What confirmed your own autism suspicions?

Hello, I am very new to all this, so please forgive any faux-pa's I make regarding post-etiquette. 

I am awaiting autism  diagnosis on the NHS. I have read up extensively on the classic signs, but I am curious what specifically confirmed it for you.¹ I have made many analogies to people over the years, as I have struggled to find a cause for what I believe is behind my decades-long battle with anxiety and depression. I am 52 years old

It is like you are walking around in a big spacesuit. You can perform basic tasks but are unable to interact with people on an intimate level. They see you, but are unaware you are in this suit. It's frustrating, as you can see people living their lives, while you can only watch. 

This is the best description of how I feel and it is a desperately lonely place to be. I often contemplate the point of it all when It seems an impossible problem to conquer in an ever increasingly complicated world.

Apologies for the ramble, but it would be nice to know I'm not alone.

Parents
  • Bountiful Greetings Violetfred! I am so glad you are here. Thank you for sharing your experience and you are not rambling at all. Slight smile

    For me, I didn't start looking into neurodiversity until around September of this year. Life was just hard. All my coping skills that I used didn't work anymore, no matter how much I tried to "overcome it", nothing worked. Then I figured it was burn out since I was doing so much and yet that didn't seem true either because the exhaustion and sensory overloads amplified. My ability to connect with people became more harder and I begin feeling like I was in a bubble observing others. I also realized that it takes me awhile to process information, conversations, or situations. Also noticing that understanding how I feel didn't have words but would come out with movements or sounds or the need to release this energy that was surging through my body. After much self-reflection I also realized that my burn outs had a patterning especially when it came to jobs and life circumstances. The whole "keeping it together" didn't work and I was beginning to have meltdowns in front of people or shutdowns and I couldn't understand why. I started researching about mental health beyond just depression, trauma, anxiety and burn out. I came across YT videos about what it means to be neurodivergent and as I kept seeing videos about ADHD and Autism, I feel it a deep resonates within my soul. I started binge watching all the videos, reading as many materials and books as possible. I did the online assessments from the website EmbraceAutism.com and that furthered affirmed my suspicions with the scores. I am on this journey of unpacking, unbecoming, and truly getting settled with who I am beyond the mask I created for so long from years of survival and trauma. And I am learning how to be patient because this will take time to discover, to develop new healthy support systems in this "vulnerable state of being". As far as a diagnosis, I've chose to be self-diagnosed for a while, until recently my therapist mentioned I might be autistic but as she put it "I wouldn't be very much." Not very validating, however, as I read people's stories, the psychology world has a lot of catching up and educating to do. I am currently reading "The Autistic Survival Guide for Therapy" by Steph Jones, and her book is continually helping. 

    I am practicing how to "accept and embrace" being autistic because saying it out loud feels too real and not sure how to sit with that uncomfortable feeling yet. Being a woman of color in the U.S. and claiming to be autistic opens a huge can of things that I am not sure I am ready to navigate yet. I am just learning how to accept ME for the very first time in my life without the lingering phrase, "What's wrong with you?". 

    I affirm Nothing is wrong with me; I am who I am in this world period. I am so grateful for every person in this community, even though I may not know you, I feel like I finally can connect with others.

     

Reply
  • Bountiful Greetings Violetfred! I am so glad you are here. Thank you for sharing your experience and you are not rambling at all. Slight smile

    For me, I didn't start looking into neurodiversity until around September of this year. Life was just hard. All my coping skills that I used didn't work anymore, no matter how much I tried to "overcome it", nothing worked. Then I figured it was burn out since I was doing so much and yet that didn't seem true either because the exhaustion and sensory overloads amplified. My ability to connect with people became more harder and I begin feeling like I was in a bubble observing others. I also realized that it takes me awhile to process information, conversations, or situations. Also noticing that understanding how I feel didn't have words but would come out with movements or sounds or the need to release this energy that was surging through my body. After much self-reflection I also realized that my burn outs had a patterning especially when it came to jobs and life circumstances. The whole "keeping it together" didn't work and I was beginning to have meltdowns in front of people or shutdowns and I couldn't understand why. I started researching about mental health beyond just depression, trauma, anxiety and burn out. I came across YT videos about what it means to be neurodivergent and as I kept seeing videos about ADHD and Autism, I feel it a deep resonates within my soul. I started binge watching all the videos, reading as many materials and books as possible. I did the online assessments from the website EmbraceAutism.com and that furthered affirmed my suspicions with the scores. I am on this journey of unpacking, unbecoming, and truly getting settled with who I am beyond the mask I created for so long from years of survival and trauma. And I am learning how to be patient because this will take time to discover, to develop new healthy support systems in this "vulnerable state of being". As far as a diagnosis, I've chose to be self-diagnosed for a while, until recently my therapist mentioned I might be autistic but as she put it "I wouldn't be very much." Not very validating, however, as I read people's stories, the psychology world has a lot of catching up and educating to do. I am currently reading "The Autistic Survival Guide for Therapy" by Steph Jones, and her book is continually helping. 

    I am practicing how to "accept and embrace" being autistic because saying it out loud feels too real and not sure how to sit with that uncomfortable feeling yet. Being a woman of color in the U.S. and claiming to be autistic opens a huge can of things that I am not sure I am ready to navigate yet. I am just learning how to accept ME for the very first time in my life without the lingering phrase, "What's wrong with you?". 

    I affirm Nothing is wrong with me; I am who I am in this world period. I am so grateful for every person in this community, even though I may not know you, I feel like I finally can connect with others.

     

Children
  • How beautifully put. I know ALL people, to some extent, project an image of how they'd like to be seen by others. Speaking for myself, I can only say that it goes beyond that. I've observed family members and colleagues over the years and mimicked aspects of their characters that I thought could build up a personna. The only trouble is, after 40 years of doing this, you start to be confused with who you actually are!

    I am a 52 year old man, yet I still feel the sense of awe in things that I did as a child. Emotions have always been rather confusing and I have always shied away from them. People just assume you're being a standoffish Brit and that it comes with the territory (ha ha). Despite this, I have never had a problem with empathy.

    Like you, I long to live in a world where people are empathetic and non-judgemental. Where you are accepted for who and what you are. A world where everybody is treated equally and fairly and you're not mocked for your beliefs.

    It's comforting to know that people like you...like us, are out there. I think I should have joined this community a long time ago; but better late than never, as they say. Good luck on your journey of self-discovery