37 years old, recently dignosed and figuring it out

Hi everyone

I'm 37 years old living in London. Earlier this year I was diagnosed with ASD which came as a big surprise to me. I never thought I had Autism. I always knew I was different and believed it was something like ADHD. Compared to my friends I always had some bad "struggles" which have led to some bad results: I dropped out of school, I dropped out of university, and in recent years I've been leaving job positions after 1 year. I've known I've been "struggling" with my mental health, and there have been behavioural patterns I've identified in recent years, however I have always been made to believe I have to just "get on with it" and couldn't allow my mental health to get in the way

It was only this year when my line manager, who disclosed to me that he got diagnosed with ASD during his childhood, asked if I was Autistic. Fast forward a few weeks, I have my first appointment with a therapist, and within the first 30 minutes they pause and ask if I was (diagnosed) Autistic. At this point I knew something was up, and the therapist assisted with a fast track ASD assessment.

I'm lucky for having an Autistic manager, and a mental health professional who was able to identify it, otherwise I would continue my life unknowing and not getting the necessary support.  I am also lucky at the time of the assessment I had private healthcare through the company I worked for, and I only had to pay a small excess fee (compared to the whopping £3000+ charge)

After getting the diagnosis there were plans on getting some support, however I left my job and consequentially lost the private healthcare which covered all the costs.

Now I'm trying to get the support again, but through a combination of NHS referral and self educating with books.

The diagnosis has been hard to swallow and I'm slowly coming to terms with it. There's a feeling of frustration and sadness that If I had been diagnosed earlier in my life, then I would generally be doing better in life both personally and professionally.

Looking back I can identify many behaviours as Autistic (or caused by being Autistic) which have caused some real struggles in my life. I've struggled to hold down jobs, and my former partners have struggled with me in relationships.

I'm trying to keep positive, and I still don't know what I'm doing or how to go about it. Hopefully the NHS will be able to provide support, and I'm looking to participate in local support groups in London and meet and connect with other neurodivergents.

That's me.

So how about you?

Can you relate to my journey?

Regardless of whether you can or not: What has your journey been like? Have you got the support you needed? If not, what you been doing to get that support?

And for those in employment: has your employer (and line manager) been supporting you and, if so, how?

Parents
  • Hi gkimmelman, and welcome to the online community!

    There are some advice pages and resources here on the NAS site you might find useful having just been diagnosed. There is a section on the advice hub called 'After Diagnosis' - https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/after-diagnosis - which has some discussion on how you might feel post-diagnosis, support that is available, and disclosing your diagnosis to other people, including at work.

    There is also a section on getting support at work specifically - https://www.autism.org.uk/advice-and-guidance/topics/employment/support-at-work/autistic-adults - which covers some of your rights under the law and has links to further resources on autism in the workplace.

    And with regard to support groups, the Autism Services Directory can help find local organisations and services across the UK - https://www.autism.org.uk/autism-services-directory - and can be filtered for your postcode and the type of services you're interested in, so you could try putting in social groups in London for example.

    Hope this is of some help,

    Ross - mod

  • I can relate to your situation having found out at age 44 after paying fir assessment.

    I'm reading some books (some annoying as they focus on the author's angle or one fella trying to wedge sexual orientation into ASD), tried NHS its just been a brick wall still they just signpost and I hit dead ends, lots of sign posting which turns out to be wasted effort, been trying private psychiatrist and just ended it since it was very much as I'd expect from a text book of turning the sentence back on yourself to find the answers and ultimately frustrating so far.

    Happily pay someone that can really help in a good will hunting way and not just go by the textbook for answers. So far not been a great change and not found coping mechanisms for situations which I think would really help.

    Waiting for access to work which has been around 6 months so far Smile it's just shocking there seems to be no recognised help.

    Annoyingly I have Bupa private med now who won't have anything to do with it. 

  • "one fella trying to wedge sexual orientation into ASD"... was the book "Unmasking Autism" by Devon Price? If so, I agree, that book is not particularly helpful (being polite!).

  • Ahh, I ordered that book the other day!

Reply Children
No Data