Newly diagnosed & flailing

Hello. My name is Martin; i am 66yo and was diagnosed as autistic, with social anxiety disorder (such an ugly word, that) and dyspraxia, 3 months ago. So far, i've only had my counsellor to talk to about my diagnosis as neither my friends nor family seem to be interested in helping me to process what i believe to be the biggest discovery of my life. I'm struggling to absorb the news on my own, after a lifetime spent masking & trying to fit in (& failing), and there seems to be no help out in the 'real world' from organisations etc. I'd welcome any advice, pointers etc.

Parents
  • It's nice to meet someone who was older than I was when I got my diagnosis. I was 60 when I was clinically diagnosed. That was four years ago. As you might imagine, I had a long series of ah-hah moments as I reflected upon my life and retroactively saw why I had made some of the personal and career decisions that I had made. It was a liberating momement. My only regret is that I would have liked to have known this much earlier in my life. 

    As with you, niether friends nor family were much interested in talking to me about my diagnosis. I don't think they meant to be callous and insensitive. I suspect their reacton was one of ignorance in not knowing what autism was and/or how to respond. 

    Here is a link to a free HIPAA compliant AI mental health chatbot. It might help to talk out your problems. 

    This site also exists for people like us. If you have a specific question or concern, feel free to post it at this site. 

  • Hi there, Retired Teacher. Like you, i truly wish i'd found this out years ago. When i think of the broken relationships, the missed opportunities and bad decisions, it saddens me. Who knows now, but maybe i found the right person for me and threw away my chance. Well, there's no point in dwelling on what-ifs; now it's time to look forward while i still can, if i can. I'm just fortunate that i have such a good counsellor: she's gone above-and-beyond in helping me.

    You're right, i don't think anyone has set out to be callous or insensitive, though whether it's ignorance of autism, or something else, i don't know, although the following example might be illustrative: i've recently returned from a 3wk motorhome holiday across Europe with a cousin; on our 2nd night out he told me to stop talking about my autism, so my holiday (1st in over a decade) became a rolling cascade of triggers that i had to keep to myself. He simply didn't want to engage. This i've found with everyone i've mentioned it to. Ignorance can be overcome by asking questions, which nobody i know has bothered to do. I'm resilient though, and self-sufficient, and have learned to live as a man alone. Never married, no children, just me. It has been tough, but liberating and very educational.

    All the best to you.

Reply
  • Hi there, Retired Teacher. Like you, i truly wish i'd found this out years ago. When i think of the broken relationships, the missed opportunities and bad decisions, it saddens me. Who knows now, but maybe i found the right person for me and threw away my chance. Well, there's no point in dwelling on what-ifs; now it's time to look forward while i still can, if i can. I'm just fortunate that i have such a good counsellor: she's gone above-and-beyond in helping me.

    You're right, i don't think anyone has set out to be callous or insensitive, though whether it's ignorance of autism, or something else, i don't know, although the following example might be illustrative: i've recently returned from a 3wk motorhome holiday across Europe with a cousin; on our 2nd night out he told me to stop talking about my autism, so my holiday (1st in over a decade) became a rolling cascade of triggers that i had to keep to myself. He simply didn't want to engage. This i've found with everyone i've mentioned it to. Ignorance can be overcome by asking questions, which nobody i know has bothered to do. I'm resilient though, and self-sufficient, and have learned to live as a man alone. Never married, no children, just me. It has been tough, but liberating and very educational.

    All the best to you.

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