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Are we a Pioneer generation?

TheCatWoman

I ask this because as an older person (62) I feel that nobody knows what to do with us as we age, help thats right for children isn't right for us, what will happen when we start getting age related conditions like dementia? Will we be tested as an NT person, will the tests be adapted for us? I mean it's no good putting down communication difficulties as a sign of cognitive decline when someones always had them?

How will we be accomodated in a care home? Will we be pushed in front of the telly that we hate, made to do sing songs to music that upsets us, will we just be seen as difficult and treated with a chemical cosh?

Will our generation be the ones where all the mistakes and abuses are made, whereby it will get better for those who are now in their 20's and 30's?

Do you think we should start agitating now and trying to put these questions forward before it's to late and we're unable to advocate for ourselves or each other?

Parents

  • You can write an Advanced Statement which decision makers have to take into account if you lose mental capacity and they are planning your care.

    It's not legally binding but they do have to take it into account. 

    So you can explain preferences about  needing to be more isolated and not in a room with lots of others due to autism etc.

  • in reply to JLyn

    I don't have much trust in desicion makers after they all had a meeting about my friends Mum without telling the family, we only found out be accident because we went to vist her that day, my friend was a psycho geriatric nurse at the time working on a ward that assessed people for dementia and other other similar problems. He had to fight to get heard and to take his Mum away from thier "care", she didn't need to be in a care home and wasn't demented and had been looking after herself quite well until laid low by a UTI, there was no real reason to expect she wouldn't make a full recovery.

  • in reply to TheCatWoman

    UTIs can really hit hard can't they. They can bring on delirium which can be confused as dementia. I expect she was relieved to get home and grateful for her sons support. 

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