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Where do you turn for support?

NAS96052
1 day ago

Good morning 

  • Recently diagnosed in my 50's but have always known I was different.  I feel very alone with this new information. I can't even begin to describe the anguish I feel. Definitely feel like a failure and angry at everything I could have achieved had I been 'normal'. I don't think I have ever been the real me, I've always been the person people expect to see if that makes sense. Life has declined significantly over the last few weeks. Meltdowns are more frequent and severe resulting in days in bed,  my brain appears to have turned to mush, I can't perform the simplest of tasks, depression is severe. I don't know how to change to make life easier. Only advice after diagnosis was to join a support group and read about the condition. Feel very, I can't even put it into words, abandoned and isolated possibly. GP is fantastic but I feel extremely guilty taking up so much of his time. How do you get out of this huge hole and live?
  • I only have 2 teenage daughters at home and no other support from family. It's so hard.
Parents
  • 2 hours ago

    I’m sorry - if it’s any comfort I don’t think your reaction is that unusual. It’s a lot to process and makes you re-evaluate so many aspects of life, our history, so many things. Give it time - you may find that you’ll work through these feelings and come to a point where it’s actually really helpful to have the diagnosis. 
    You cannot change the past - ruminating on it in this way can cause a lot of pain and sadness. What matters is NOW. How can you improve your life now - not in huge life changing ways initially- just in terms of small aspects of life that can make you feel a little happier. Everyday things like music, reading, films, going for a walk - anything that will help your well being and happiness. Be kind to yourself - stop being so hard on yourself. Be a friend to yourself rather than a harsh critic of yourself! Life is hard enough without doing that. You can get through this and find peace with it. Give it time and be gentle with yourself. There are always people here in this community to talk to - you are not alone. Your feelings are entirely normal - acknowledge that this is not easy but know that it will be ok in time. 

Reply
  • 2 hours ago

    I’m sorry - if it’s any comfort I don’t think your reaction is that unusual. It’s a lot to process and makes you re-evaluate so many aspects of life, our history, so many things. Give it time - you may find that you’ll work through these feelings and come to a point where it’s actually really helpful to have the diagnosis. 
    You cannot change the past - ruminating on it in this way can cause a lot of pain and sadness. What matters is NOW. How can you improve your life now - not in huge life changing ways initially- just in terms of small aspects of life that can make you feel a little happier. Everyday things like music, reading, films, going for a walk - anything that will help your well being and happiness. Be kind to yourself - stop being so hard on yourself. Be a friend to yourself rather than a harsh critic of yourself! Life is hard enough without doing that. You can get through this and find peace with it. Give it time and be gentle with yourself. There are always people here in this community to talk to - you are not alone. Your feelings are entirely normal - acknowledge that this is not easy but know that it will be ok in time. 

Children
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