Autistic and old

I'm wondering what it will be like for autistic people as we age and maybe need residential care, will there be any provision for us? Will the cognitive tests for dementia be modified to accomodate us? I could well see a situation where I'm asked to do something and can't do it because I've never been able to do it and its not a sign of cognitive degeneration.

How will care homes cope with us? Will we be force fed ABBA or The Beatles because thats what some well meaning NT decides was popular in our youth? What if we want to listen to the Sex Pistols or the Clash, or Pink Floyd? I see older people in care homes and what they're made to put up with in terms of "activities", a steady diet of soaps would make me wish to to impaired to care, will we be able to watch re-runs of Game of Thrones? What about our need for personal space? I've heard that called "self isolating" by dementia nurses, it dosent' seem to occur to them that for many of us hell is other people.

Parents
  • My mum spent 2020-2022 in a care home, it was hell. What with Covid,and the fact she was only council funded she ended up somewhere not great. No booze, no decient food, no sky TV, full of old grumpy people. Personally I will end it myself than go into care. It is true that people now in their 60's will be tech savvy and have much greater demands like wanting Netflix, Sky, more food choice and not be backward in complaining like my mum was.

Reply
  • My mum spent 2020-2022 in a care home, it was hell. What with Covid,and the fact she was only council funded she ended up somewhere not great. No booze, no decient food, no sky TV, full of old grumpy people. Personally I will end it myself than go into care. It is true that people now in their 60's will be tech savvy and have much greater demands like wanting Netflix, Sky, more food choice and not be backward in complaining like my mum was.

Children
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