Constant fatigue after going out + socialising

Does anyone else get fatigued and a headache after going out like into shops and when you've been socialising?

I get this all the time and it really puts me off from going out. I go in to it with a positive attitude as well and it makes no difference. I've been told it would make a difference but it hasn't. It's so frustrating because I just want to get on but because I went out this morning I'm now feeling extremely fatigued, dizzy and I have a headache. I don't know why this happens. It's nothing serious, I've had tests at the doctors and nothing was ever found and yet here I am feeling like I've just run the marathon....

I don't know if it's the autism or the anxiety... Or maybe a bit of it all together?

I do know though that I hate getting like this. I was diagnosed with ASD when I was 14 and though it's been over 10 years since my diagnosis I don't really know anything about ASD and how it affects my life. 

That's why I've joined here really to try and find out more about it. Hopefully then I'll be able to better manage how it affects me. 

This fatigue I get when I go out and do things has already cost me my job. I waited so long to get a chance at work and after a few days I was practically bed ridden. It's crazy. 

I'm in bed bed now, absolutely exhausted, and feeling like death. Wish this wouldn't happen I really do. It's fine when I stay in my room but when I leave my comfort zone all hell breaks loose and I'm left feeling like I've got a flu bug thing. 

I did say to the doctor but she won't give me anything because it's not real. She thinks it's a mental thing and "phantom" pain and exhaustion. No use at all. Rest helps but it takes time to recover.

Sorry for the rant. Not really how I wanted to introduce myself to the community. I'm just tired and feeling run down.

  • Hi and welcome 

    I am sorry to hear that you’re having a tough time atm. Although I have never been bed ridden from exhaustion I do feel quite overwhelming effects from it. Socialising with some people really zaps my energy and makes me feel like my head cannot dispose of all the small talk and nonsense that’s been placed there. Noise and lots of people is much worse for me, I can tolerate for a little while but once I’m aware it’s costing me it goes downhill. 
    I find 1 to 1’s far easier and am able to communicate much better with women than men but essentially it comes down to the type of person. 
    When I do socialise with my friends (men) I do get tired quite easily from wading through all the BS that’s flying around. I’m just not able to be on that level and have always struggled with it. 
    From what I’ve read on here noise cancelling headphones not only help with sensory processing but people do tend to leave you alone if you have plugs in. 
    Also do the people you socialise with know about the autism?  Maybe if you could explain how some things can affect yourself you wouldn’t try and manage it for so long. That way you could let them know when you need to leave and they would understand why. 
    II wear sunglasses a lot which not only helps with bright sunlight but they feel like a shield for me, I can talk to people easier with them on as I feel my eyes give a lot away with me.

    I really hope you feel recharged again soon and try not to overdo things all in one go

  • I find socialising exhausting too, just being around people the noise, lights and storm force auras of some people feels like being battered. For the most part I find online easier, but not always, I still find people aggravating. I find it dificult to find people who share my interests and I enjoy a good debate, but lots of people don't and think that by repeating something it makes it more true. I find mixed company more difficult I find talking to women easier than talking to men, who tend to mansplain everything and think they have a more of a right to an opinion and that theirs is always right.

  • This affects me on a daily basis. It affects all aspects of my life. I think it may be overstimulating of the senses? 

  • Yes, socialising can have that effect on me- extreme fatigue afterwards and it can take me days to recuperate. What I have noticed though is that with some people, I feel much less exhausted after socialising and there are a few very special people with whom socialising isn't actually exhausting and can occasionally even be energising. But this is extremely rare. I need to be very careful in pacing myself with seeing people because it takes so so much energy, which is frustrating. I think if the socialising is in a loud environment it is even worse. I find it fascinating to see how neurotypical people seem to gain energy from being with people- I have no idea how they do that but I do wish that socialising wasn't so exhausting because I do often feel lonely. I find online socialising or phoning a friend to be less demanding though it still needs careful dosing. Hope this makes you feel less alone!

  • CouId it be you suffer with migraines do you have visual / light sensitivity or sensory integration issues ?  I don't have headaches but I do develope symptoms of secondary narcolepsy type 1 , when people discuss their issues online pretmdtory narcissistic idiots do stalk in public and attempt to trigger your condition , they position themselves to trigger your fight or flight they attack the senses and sympathetic nervousystem they surround you and destroy your life , they hsve no right but they do it regardless and what they do places people in crisis and ruins the hard work of all concerned and consultants Dr's and specialists they cause psychological scaring that lasts a lifetime , they are covert about what they do because they do understand just how disgusting antisocial and devious it is and how abnormal pathetic and despised by others it is to enjoy or be exited to target a individuals vulnrabilities and stalk to attack and destroy them, the world is not the place it was society has changes what was once utterly unacceptable and rejected by the vast majority of people now seems to be ignored to the point it has become tolerate and in turn by simply ignoring it , it has encouraged the worst behavioural traits in a small portion of people who have do have the intrinsic abikity to become narcissistic and psychopathic , I truly dispare . 

  • I just joined the community too! I don't know how to describe myself, honestly. I have such loving and meaningful relationships with people I'm close with in my life and also need serious alone time to recharge from just existing. I'm a part time caregiver for my dad with Alzheimer's and it is so draining/overstimulating for a lot of reasons.

    I'm currently feeling burnt out from my 9-5 (a fully remote position that is not client facing and pays well but I still get tired from being online all day) and constant stimulation from being on social media too much (my own fault, which I'm trying to work on). This weekend is absolutely booked with plans for my younger brother's birthday and getting together with friends. I am having a lot of anxiety about it and am looking forward to Sunday evening when I can be alone already! I get overstimulated really easily these days and I know having a ton of social time is going to make me absolutely exhausted. I love my friends and family and know that I should just be excited, but I have a bad tendency of overthinking things. I have never been diagnosed with anything but I know that I'm different from others. For example, because I know that this weekend is going to be super busy, I'm having a super quiet Friday. Noise cancelling headphones in and silent vlogs on for the majority of the day. Low lighting, comfy clothes, easy food that doesn't take a ton of prep. This helps me feel more in control of my mood and helps me feel more prepared for extra social time this weekend. For errands, headphones are a MUST for me, even if I'm only going to be out for 45 minutes-1 hour. 

    You are not alone! Please take time to take care of yourself and find simple daily routines that make *you* feel good. Boundaries are essential. I am sending you a giant hug!

  • I've just recovered from a busy few days, only to be launched into the next busy few days, roll on sunday when I can relax and do nothing by recover. Other people are exhausting, you don't have to interact with them to be exhausted by them, just the busyness is enough.

  • Welcome to the community! I absolutely relate to your experience! I’m lucky to live in a quiet area of a small town, so there are a lot of parks and woods and this is where I love to go. Sometimes the bird singing also gets too much for me, but I love walking there. I go to the town only if I need it and I do my best to do the shopping as fast as possible. This way I can stay outside without being constantly overwhelmed and exhausted. Before I lived in a big city and I spent much more time at home although it was also not that quiet. Socialising always makes me exhausted, but I rarely do this. 

  • There's no right or wrong way to introduce yourself. You're still welcome!

    I relate though. We had Eid on Wednesday and I did have a big headache by the end. Lots of people and noise. I can tolerate it but there is a come down.

    Socialising in general still leaves me exhausted but leaving the house in general seems to do that to me.