Published on 12, July, 2020
Here's a video I made about The Autism Investor Summit
youtu.be/-UbsdA9a71Q
Hi neurokin!
You may find this article about research and funding priorities for our autistic community interesting/relatable:
https://autistic-village.com/2021/11/02/why-bad-research-like-spectrum-10k-should-no-longer-get-the-green-light-and-what-should/
I absolutely agree with all of them obviously but I would particularly like to see as stated more emphasising on amplifying non speaking members of our autistic community and I would love to learn and see more attention given to the experience of being apraxic (the reason why many nonspeakers can’t reliably use speech).
What do you think about the priorities explained in the article?
I will take a look at the article. Thanks! Thinking about autism research reminded me of Liz Pellicano who is an autism researcher that I saw give a talk last year and that really impressed me- she is very keen to improve lives of autistic people. Her research team is composed of autistic and neurotypical individuals and they take into account the opinions of the autistic community and work closely with autistic individuals to make sure their work will be of use to help autistic people flourish . I was really impressed and think we need more people like her and funding needs to go towards their work. profiles.ucl.ac.uk/.../about
So glad you found the article relatable and interesting , that’s even more meaningful as I wrote it! That's brilliant!
So now do you understand the potential difference between Processing Mutism and Situational Mutism? What is your experience of mutism like?
Thanks so much for reading it and giving feedback, I appreciate it so much! I will be writing a series on this subject, so hopefully you can gain more insight into your autistic experience of mutism. I will be writing about other stress responses including freeze and fawn and linking experiences of overwhelm to monotropism.
I look forward to more of your comments!
Thanks! I regularly check it the Autistic Village website. I recently read this which I thought was very interesting as it discusses mutism which is common amongst autism but you don't really hear much about it.
As someone who experiences mutism from both autism and anxiety this made very interesting reading for me. It's a great site, always informative and interesting.
You are so welcome! I am glad you found it interesting, there are lots of other articles on the Autistic Village website that you may find insightful.
Ausomely Autistic said:It’s great to see more autistic researchers focusing on studies that actually are beneficial to our communities as opposed to non autistic ‘autism’ researchers who sometimes want to try and find out why we exist (which is obviously dangerous and dehumanising in itself!).
Absolutely! Really great to see more autistic researchers out there. Thanks for the link in your original comment, informative and interesting. A lot of food for thought.
You are welcome!
It’s great to see more autistic researchers focusing on studies that actually are beneficial to our communities as opposed to non autistic ‘autism’ researchers who sometimes want to try and find out why we exist (which is obviously dangerous and dehumanising in itself!).
Thanks for the link to Pellicano’s profile. You may also be interested in other autistic researchers including Monique Botha (specialism in minority stress) and the work of Chloe Farahar (specialism in prejudice reduction, mental health, positive autistic identity and culture - pronouns for Farahar are they/she)
https://youtu.be/Ijap1yOBVd0?si=bH70g0pBemeusGqg
https://www.moniquebotha.com/
https://aucademy.co.uk/chloe-farahar-phd/
https://blogs.ucl.ac.uk/stigma-research/2021/06/25/a-rose-by-any-other-name-would-smellof-stigma-or-the-psychologically-important-difference-between-being-a-person-with-autism-or-an-autistic-person-by-dr-chloe-farahar/