Skip to main content
Close Button
Donate
  • Replies 9 replies
  • Subscribers 101 subscribers
  • Views 901 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

My informants responses on the ADI-R doesn’t match how I feel

NAS89269
10 months ago

Hi all,

My informant completed the ADI-R today, and they called me when it finished and told me what they had said. A lot of things don’t match up to my experience - for example, they said I can carry out small talk (I struggle massively with this), that sounds didn’t bother me as a child (I used to run away from the hoover/cover my ears, and would cry during storms because of the noise) and that I don’t mimic people (I’ve been doing this my whole life, to the extent even my accent can change). I scored over the threshold for all areas, except for 1. 

I feel I strongly identify with a lot of autism traits, and when my informant told me the assessor felt a lot of my symptoms sound like social anxiety, I don’t think this matches me, I feel it’s more than that. I found my ADOS-2 assessment so overwhelming, I couldn’t complete some activities as I got so stressed I cried.

Does anyone have experience with below threshold ADI-R scores and still getting a diagnosis? Until today, I was convinced I’d be diagnosed, now I’m not so sure. 

Thanks. 

Parents
  • 10 months ago

    Yes- I scored WAY below the threshold in my ADI-R as my mum basically lied through most of it and said I had no difficulties aprt from social interaction. The clinician said the same thing to her- it sounded like social anxiety.

    However, in my ADOS-2 the clinician put something along the lines of whilst Jessica's communication is relatively good, she clearly presents as autistic and she picked up on lots of (embarrassing) things and movements that I do which only my partner has ever seemed to have picked up on...

    So I still got diagnosed as I was well above threshold on this and my questionnaires  

Reply
  • 10 months ago

    Yes- I scored WAY below the threshold in my ADI-R as my mum basically lied through most of it and said I had no difficulties aprt from social interaction. The clinician said the same thing to her- it sounded like social anxiety.

    However, in my ADOS-2 the clinician put something along the lines of whilst Jessica's communication is relatively good, she clearly presents as autistic and she picked up on lots of (embarrassing) things and movements that I do which only my partner has ever seemed to have picked up on...

    So I still got diagnosed as I was well above threshold on this and my questionnaires  

Children
  • 10 months ago in reply to Jessica S

    Oh I’m so sorry your Mum lied, that must have been stressful for you. I am hoping I will get a similar outcome when I get my diagnosis (or not) in the next few weeks. My partner is the same, he’s picked up on things that my Mum had never noticed before. Thank you!