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My informants responses on the ADI-R doesn’t match how I feel

NAS89269

Hi all,

My informant completed the ADI-R today, and they called me when it finished and told me what they had said. A lot of things don’t match up to my experience - for example, they said I can carry out small talk (I struggle massively with this), that sounds didn’t bother me as a child (I used to run away from the hoover/cover my ears, and would cry during storms because of the noise) and that I don’t mimic people (I’ve been doing this my whole life, to the extent even my accent can change). I scored over the threshold for all areas, except for 1. 

I feel I strongly identify with a lot of autism traits, and when my informant told me the assessor felt a lot of my symptoms sound like social anxiety, I don’t think this matches me, I feel it’s more than that. I found my ADOS-2 assessment so overwhelming, I couldn’t complete some activities as I got so stressed I cried.

Does anyone have experience with below threshold ADI-R scores and still getting a diagnosis? Until today, I was convinced I’d be diagnosed, now I’m not so sure. 

Thanks.