'New' Future after Late Diagnosis

I'm sorry if this doesn't make sense or is too long; it's my first ever post!

I have always known I had autism, even before my late-ish diagnosis (24F) last year. However, because I have spent my whole life comparing myself to NT people, I'm now not sure how to live my life as my 'new' autistic self?

I had planned my life out from a fairly young age with the typical ambitious milestones: get really good grades, go to the best uni I can, smash uni, and then land a good graduate scheme. But this didn't happen. I had a terrible time at uni, resulting in several MH diagnosis'. I was in a constant state of burnout, barely holding myself together. But I pushed through and started a Masters after graduating which, inevitably, ended up in me dropping out because I was too exhausted.

After I dropped out, I took some time to focus on getting my medication right, engaging with therapy, building my support network, and generally understanding myself better. This led to me pursuing an autism diagnosis after advice from my therapist - something that was confirmed last year when I did receive my diagnosis.

I am starting to learn that, in order to look after myself, I may have to change my aims and ambitions. In this process of figuring out my future and essentially 'grieving' who I thought I was going to be my whole life - the high-flyer with no fears - I find myself heartbroken that I can't be the imagined self I always pretended to be. I still find myself constantly comparing myself to people I went to university with and, by doing that, I feel like I've failed because I can't do what other people do without burning myself out so badly that I have to go back to real basics.

After taking time out from paid work, I am now in a position where I feel I want to be my true, authentic, un-masked self as much as possible to avoid burnout, but I also want to rejoin society a bit more. My issue that comes with this is that I now also know my boundaries and limitations, meaning that I am struggling to know what employment or commitments allow me to be who I really am: someone who is 'more' autistic than I originally thought I was!

I was wondering if anyone has any recommendations on:

  • How to meet and connect with other autistic people so that I can start to see how other autistic people live?

  • If you've experienced this, how did you learn to accept your 'new' self?

And I would also love to hear what jobs people do and what accommodations they ask for in the workplace, if any?

Thank you in advanced for any advice or support - I really am at the start of a journey that feels so daunting, so any help or advice means the world Heart

Parents
  • I can’t really give much advice or info about what I did as very newly diagnosed! And am still figuring things out massively. 

    As part of my autism assessment they produced a letter for my employer with reasonable adjustments in based on what I particularly struggle with. I’ve shared this with my employer (I work in housing for a local authority) but have said that I currently don’t want any accommodations made for me, but just wanted them to be aware of what I find difficult and why I react like I do in certain situations. I have now also got a noise cancelling head set which has helped massively. I also am in discussions about reducing my hours as am working full time, but am in a cycle of reaching burnout and then being off work for weeks at a time and want to avoid that going forward. 


    I don’t know any autistic adults in real life! So can’t make any suggestions on that. I have found this place to be good at feeling not quite so alone on so many things however :) 

  • Thank you so much for sharing your experience! I am struggling to even find a role at the moment as I would not be able to do it full-time, but I am taking my time and keeping my eyes peeled for jobs Heart

  • Is it worth looking into some volunteering? Give you an idea of what you can and can’t manage and see what you enjoy doing without the commitment of employment? 

Reply Children