BBC Piece

I saw this online and thought I would share. It seems our voices are being heard but they are still speaking for us to a certain extent:

https://www.youtube.com/watch?v=FbR3K4L2XnA

I know plenty of people likely on the spectrum, mostly creatives, that work in TV. They should ask us to make programs for them!

Parents
  • I kinda agree on the lack of support - having to wait 2 to 3 years for a diagnosis on the NHS means that there will be many who self-diagnose while on the wait list (like me) and who then have to go through the heartache and confusion alone.

Reply
  • I kinda agree on the lack of support - having to wait 2 to 3 years for a diagnosis on the NHS means that there will be many who self-diagnose while on the wait list (like me) and who then have to go through the heartache and confusion alone.

Children
  • Even with a diagnosis, I'm sorry to say, you are still left high and dry. Since I got diagnosed in 2020 nobody has checked back to see if I'm ok or offered any help. Not a single person

    It's a really bad state of affairs. The rollercoaster you are left to deal with is a long road with many questions

    Thank f for this forum tbh