New Here Diagnosis help please

Hi I am 51 and have C-PTSD and OCD. I have struggled since forever with all sorts of things, but until recently, 8 months ago when I became so burnt out I could not function and was nearly hospitalised, that Autism was first mentioned. I have many of the symptoms, but I can communicate well, I have learnt what people like to hear and even if I don't mean it, I say it because I know that is what you are supposed to say or act. I find it really tiring and often have to have quiet alone days where I rest and do nothing, but had never put them both together before.

Anyway my therapist has sent a referral to my GP and this is where it falls down. Had to wait 5 weeks for a phone appointment which lasted 3 minutes and the GP couldn't see my referral (my therapist hand delivered it) he also couldn't give me any info on how long the waiting list is, or on right to choose. He said someone would call me in a few days with the info. No call so I rang back to be told they had my referral but no further info and someone would contact me with info by end of week. Still no call

Is this normal for Autism referrals also does anyone know what wait list times are like in the North West? I know they vary all over the UK. But I feel like I have waited so long to get a proper diagnosis, always being fobbed off with it's just generalised anxiety, until this time when I completely burnt out. Would really appreciate some advice

Parents
  • Hi, I had to email my gp a couple of times. From first seeing him to being accepted was about 5 months. The wait time was 2 years from then. I’m now 18 months in from first seeing my gp, I  email the assessment team every 6 months to check the time scale hasn’t altered and that I’m still in the queue. Was quoted £2,000 from a private provider, I’m happy to wait as it’s taking that amount of time to process my life and how I cope with being autistic.

    I prefer the way I will be assessed as it will be in person, don’t cope too well with video calls. I am a similar age to you. (55)

  • Hi

    I have found out my referral has been sent off, so guess I wait for a letter confirming I have ben accepted, and hopefully find out how long the waitlist is. I am the opposite prefer video call to 1 to 1. Glad you are finding ways to process it all 

Reply
  • Hi

    I have found out my referral has been sent off, so guess I wait for a letter confirming I have ben accepted, and hopefully find out how long the waitlist is. I am the opposite prefer video call to 1 to 1. Glad you are finding ways to process it all 

Children
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