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Diagnosed Today Aged 53 and a bit

Agnesi

I just thought I'd say hello. I'm a bit shell shocked at the diagnosis to be honest, even though I expected it. I think it's the part of me which has been in denial all my life which is shellshocked. 

I lost my lovely mother a year and a half ish ago which was about 6 months after I was referred for assessment. I think my diagnosis might open too many cans of worms for remaining family and very strangely I don't want to tell most of my long term friends...although I think eventually I might. I'm not married and have no children. So, although I was initially elated this afternoon, I feel a bit isolated too. I've been referred to a local support group though and it'll be good to talk to people who 'get me'.

It is a comfort reading other posts here too. I can't find the original but whoever it was who welcomed someone else to the WTAF club, this is continuing to make me chuckle! Thank you!

Parents

  • I think we go through a period of grief so strap in. For the life we lost, of potentially could have lived if we'd had been diagnosed sooner?

    Sorry to hear about your mother leave us, but glad you sound like you have a good stock of friends.

    It takes time, and is a constant source of revelation in my experience. Your old life will continue to reveal the 'oh right, that's why that happened' moments for a long time now

  • in reply to JT

    Thanks for your reply. It's good to have a heads up, so to speak. I think I've had some of the grief already which led me to seeking a diagnosis. I was teaching in an autistic school for a short time a couple of years ago and thought what an amazing environment it was and wondered how much more I might've thrived/achieved with such support. It was a lovely experience and a revelation. I'd often wondered about myself before that but that's the first time it felt very real if that makes any sense. I do feel there might be more grief to come though and it's really helpful to know the experiences of others.

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  • in reply to JT

    Thanks for your reply. It's good to have a heads up, so to speak. I think I've had some of the grief already which led me to seeking a diagnosis. I was teaching in an autistic school for a short time a couple of years ago and thought what an amazing environment it was and wondered how much more I might've thrived/achieved with such support. It was a lovely experience and a revelation. I'd often wondered about myself before that but that's the first time it felt very real if that makes any sense. I do feel there might be more grief to come though and it's really helpful to know the experiences of others.

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