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Disabled Facilities Grant

urspecial

Hi All,

But has anyone had any success in getting the DFG or having minor adaptions in the house.

I would need to have rails and prehaps a small wet area in my bathroom, as my current mental health and Autism are making it very difficult for me to currently use them plus there's damp which increases my anxiety further.

I would be assessed by an OT but my local council has trained their OTs in Autism yet, so there may be problems with this.

 

Anywho, any advice?

 

urspecial

Parents

  • Well, just sent out a long email telling them that I don't have hyperacusis I have auditory hypersensitivity so their recommendations do not apply!  Someone having a panic attack can have the same symptoms as someone having a heart attack for instance yet you wouldn't treat them the same.

    Also, evidence that by far the most common causes of hyperacusis are noise injury or head injury, neither of which apply to me.  I also found some great links about a study into the causes of auditory hypersensitivity in autism and some which show that Auditory Integration Training (AIT) which is sound exposure that is a supposed treatment for hyperacusis does not work for autism, as I'm sure she had spoken to me about this during her assessment and in any case it's the opposite of what they state, which is that measures to decrease noise such as insulation exacerbate the condition!

    I rounded off with information about the Equality Act 2010 and links to the Leading Fulfilling and Rewarding Lives strategy and the Autism Strategy as it includes housing and states that:

    "People in charge of support in your local area should listen to what people with autism and their families and carers need."

    "You should have a say in all decisions about your support. And you should get the support you want and need."

    ...and informing them that adherence to these laws is not optional!

    As there was no option for asking them to review their decision, I then copied the email to the ombudsman because the enclosed leaflet states that that is the next course of action if you are disatissfied with the outcome of your assessment.

    When, when are the authorities going to start following the law!  They are still untrained in autism, jumping to wrong conclusions, lumping us in with other conditions that do not apply, refusing support, refusing assistance and fobbing off!  Individual staff are totally unaware of their responsibilities as it seems are whole departments and whole authorities.

    Why are the requirements not filtering through to them?  Why are urgent directives for distribution to all staff not going out?  Why are managers not being given training to then filter on down to lower graded staff?

Reply

  • Well, just sent out a long email telling them that I don't have hyperacusis I have auditory hypersensitivity so their recommendations do not apply!  Someone having a panic attack can have the same symptoms as someone having a heart attack for instance yet you wouldn't treat them the same.

    Also, evidence that by far the most common causes of hyperacusis are noise injury or head injury, neither of which apply to me.  I also found some great links about a study into the causes of auditory hypersensitivity in autism and some which show that Auditory Integration Training (AIT) which is sound exposure that is a supposed treatment for hyperacusis does not work for autism, as I'm sure she had spoken to me about this during her assessment and in any case it's the opposite of what they state, which is that measures to decrease noise such as insulation exacerbate the condition!

    I rounded off with information about the Equality Act 2010 and links to the Leading Fulfilling and Rewarding Lives strategy and the Autism Strategy as it includes housing and states that:

    "People in charge of support in your local area should listen to what people with autism and their families and carers need."

    "You should have a say in all decisions about your support. And you should get the support you want and need."

    ...and informing them that adherence to these laws is not optional!

    As there was no option for asking them to review their decision, I then copied the email to the ombudsman because the enclosed leaflet states that that is the next course of action if you are disatissfied with the outcome of your assessment.

    When, when are the authorities going to start following the law!  They are still untrained in autism, jumping to wrong conclusions, lumping us in with other conditions that do not apply, refusing support, refusing assistance and fobbing off!  Individual staff are totally unaware of their responsibilities as it seems are whole departments and whole authorities.

    Why are the requirements not filtering through to them?  Why are urgent directives for distribution to all staff not going out?  Why are managers not being given training to then filter on down to lower graded staff?

Children