Correcting information in referral

Is it acceptable to write to the NHS autism service to correct information my GP sent in my referral? My name (I legally changed it a few months ago to the name I've used socially since birth), pronouns, phone number, and medications are incorrect on the letter the GP sent. The autism service has since written to me using the wrong name. It seems sensible to me to reply to correct my information but I'm often wrong about these things and do things that are considered inappropriate, so I thought I'd run it by you first.

  • The NHS does not deport people!  They may ask for proof of residence  (a) for charging overseas residents, or not, as the case may be, or (b) if services are to be provided or funded by social care they need to know which local authority is responsible.

    "The hospital" cannot refuse to correct a patient's details. They are required under GDPR to keep records up to date. You need to by-pass the clerks and receptionists and make a complaint - ask to see their data protection policy and to whom you should complain.

  • Oh I so hate that kind f situation! So awkward and stressful. I guess a letter might be worth the inconvenience to be more confident the info has reached them.

  • Update: I sent an email correcting all this information, but have had no response whatsoever. Should I assume it's been corrected or send a letter as well? I'm not able to phone.

  • My ex had a fun time with the NHS a few years back. The hospital wanted evidence that he was UK resident and started sending letters threatening to deport him if he didn't provide it. Despite being provided with our address several times they sent all this correspondence to his parents' address instead, which they could only have had on file from his birth at that same hospital 35 years earlier. Not sure where they were planning to deport him to!

    He's currently having another issue because he's moved out of our place, asked to change his address with the hospital, and they've said... No. Just no. So I get to intercept letters from them and pass them onto him.

    Brilliant system Rolling eyes

  • Possibly. In a way I hope so, though in a sense it was a drop on the bucket of the total evidence anyway.

  • Correct them!  Tell them your current correct names, telephone numbers and addresses.

    My experience with NHS hospitals and their administration is a sense of despair.

    I moved in 2012, changed GPs in 2012 to a new local one.  When I fell ill in 2013 and went into hospital, I gave my new address all the time.  The hospital still managed to send my appointments by post to my previous address.

  • It could have been that the "could not" was just a typo and they had factored in what you actually said into the results.

  • This reminds me that when I got my diagnostic report in the post, they had stated one thing (and one only) that I'd told them as completely the reverse of what I'd actually said. I'd mentioned that as very young infant I'm told that I COULD be left for a long time with just one thing to play with and when my mum returned I'd be still working away at it with the same degree of focus.They said in the report 'when he was an infant, he COULD NOT be left alone... etc.' 

    This difference was enough to make me very anxious and I got fixated on whether it had affected the score, even the diagnosis itself - and imposter syndrome kicked in (disproportionately) big time. So I contacted them, asked them to change it and to re-run the numbers so to speak. I didn't want to have inadvertently been guilty of self-defeating diagnosis fraud, even though I knew the mishearing was on their side. A few days later, a second amended copy came through the letterbox. That sentence was changed to the correct version, but the score and conclusion remained the same. I've no idea if a disinterested front-desk person just re-typed and re-sent, or if the assessors (who seemed diligent and well meaning people) did indeed factor in the change but found the critical mass all still weighted things in exactly the same way as before. But that was a stressful few days: wondering if the relief of being diagnosed was (in hindsight, implausibly) jeaopardised. Thankfully not. And there really was plenty else in the thing, correctly stated, that should have reassured me of that in advance. 

  • Absolutely, do it.  Pronouns and names are important. I was about to get my name changed, but then some life circumstances meant it had to be on hold for a while.  Luckily most people at work have accepted common use of my preferred name.  

    If you put the message politely, saying something "Unfortunately my GP records have not be updated with my name amd pronouns, please refer to me as X and by X pronouns. I am also now taking these medications..."