Older adults getting diagnosed

Hello, I'm new on here and wondering if anyone has suggestions for me. My husband is an intelligent man who turned 60 last year. We've been together for 10 years. He is a bit different to the norm (sorry if I don't use accepted descriptors here, I can only apologise as I try to describe my position).  There are a number of experiences which make him the man he is: a life spent mostly in jobs which were particularly demanding and stressful and being sent to boarding school at 7. Also he learned quite late on that he was adopted and his much older than average parents were not ones to demonstrate affection and his father followed routines rigidly. So I suppose I'm trying to say that some of his behaviours may stem from upbringing; the nurture rather than the nature as we have no knowledge of birth parents. In more recent years, his anxiety levels have been high and he was on Sertraline for a couple of years before retiring from work. A few years on and he is now, highly anxious about many day-to-day events, very reliant on things being unchanged. He does not like changes to what we will have to eat, likes to know exactly what to expect, hates to be late for anything and prepares well in advance for trips. He is uncomfortable making phone calls for information or ordering. He cannot understand when others do not reply quickly to texts or emails and will misjudge replies that may be intended to be humorous or just indicate that the person is busy with other things as being insults and abandonment. He expects me the answer questions as he would, in other words I can feel my own personality and expression is being denied and an argument can ensue if I stand up for myself and say that I'm entitled to say what I want in my own words. Often his reaction to things not being just as he would expect can be anger and I get the brunt of that. He is positive that he has autism but is asking me to find out what I can and arrange for some sort of diagnosis. I say that I'm not in loco parentis or have POA like I do for my mum who has dementia, and he must go and discuss this with the GP. I mentioned my husband's mental health when I went to see our GP last year and he gave me the 0300... counseling number. I phoned them and they offered me a 45 min phone consultation which was all they could do, you cannot refer someone else. They went through a questionnaire and concluded that I did not need counselling. I'm not sure whether I'm dealing with someone with other mental health and anger management problems or someone who is autistic. Unfortunately, some of what my husband says and does makes me think that if he did get a diagnosis of autism, it would give him an excuse to behave badly. I can only think that I have to get him to see our GP but if anyone here has ideas or has had similar problems, I would be interested to hear from them.

  • I could be reading my own story here, except that my husband is nearly 20 years older than yours.  I dread the years ahead of me and hope I too might find useful support here.  I think I need to make a GP appointment to talk about my situation.  Previous GP who has now left the practice understood and was very supportive, but he has now left and I shall have to start again with somebody new.

    Husband unlikely to accept that he has any issues - it is all because of his mother in his childhood, and for the past 40+ years it's all been because of me - I'd swear I've been taking his antidepressants for years.

    I look forward to learning more.

  • Welcome.  I am very pleased for you.  I am very impressed with the turnaround time for your "emergence.". I look forward to hearing more about your world if you choose to hang around this place some more.

  • After 72 years of being told I had anxiety and depression I knew this was simply wrong. I needed answers to my suspicions and had enough detail to justify searching for a clinician in private practice. (I could not wait for the NHS.

    I found a private consultant relatively easily and not too far away.  A ten minute initial telephone enquiry confirmed my choice and in itself was a relief. I received full details by email of the diagnostic process and went ahead and made an appointment.  I received several questionnaires which needed a good deal of focus including one which needed  my son's help to complete. I took these with me for the two hour consultation. The following week I received a draft report of my diagnosis which I am in the process of returning.  This draft includes several links, both national and local, for support and information. The final report will be sent with a shortened version for employers etc. It has been a month since my initial decision to act.

    I made the choice to go for a diagnosis in the midst of a lengthy and extremely challenging time.  The diagnosis has had a profound effect on me and despite everything that is/is not going on it has opened up an insight that will be ongoing and expanding. I now have answers to who I am, why I am and have begun to stop blaming myself so much, give myself clear boundaries ie no excuses to myself or others, be compassionate at times of anger and/or frustration and all in all be a kinder person with myself and others. 

  • …have had no post diagnosis support and I feel that aside from having a live in carer in U.K. council property to comply with council rules to (not) live alone, in order to make up for the parental discipline and proper parenting I never had in childhood because of parents own childhood issues resulting in thier inappropriate Marraige, that I need ultra strict Millitary style discipline as being the only way to manage my condition no matter how hard this would be for me on a personal level “for my own good” in order to make me “cop myself on” coming from a traditional Irish Catholic background in the 1970’s living in the U.K. since 2002 as people need to be “cruel to be kind” - I’ve reached out to many religious orders of Catholic Priests, Friars, Brothers and Nuns for support given my Irish Catholic background 

  • I’m newly diagnosed last year at age 51 (now 52) working but finding everything very hard, contacted social worker to access support 

  • The assessment's validity is based on the qualifications of the assessor or assessors, not the source of funding.

    Taken verbatim from the NICE guidelines for the assessment of ASD, "Diagnostic assessment, which in the UK uses ICD-10, is often within a multi-disciplinary team but at a minimum is by a qualified clinician, usually a clinical psychologist, psychiatrist or neurologist." From the document: Autism Recognition, referral, diagnosis and management of adults on the autism spectrum, National Clinical Guideline Number 142, p. 25.

    There is no mention of funding, just the qualifications of the clinician doing the assessment.

  • "if this isn't autism, it's something else and he needs to know what"  I know; that would help me too! Thank you for your comments.

  • Thank you. At the moment he is definitely giving me the job of researching.  Something I have read is that the NHS does not really pay attention to private assessments, but I will definitely be looking into them.

  • If he's asking you to take charge the only way you can go is private. He'd need to see a GP to go through the NHS. To be fair though for many autistic people calling a GP is too much. You could organise a private referral.

    As for the excuse for behaving badly thing...oooh errr... if this isn't autism, it's something else and he needs to know what

    If it is autism...it's NOT excuse, it's difference and difficulty from unmet need...

    But establish cause first, then we can help you and him with the rest

  • I was diagnosed at age 59. Once I had the idea that I might be autistic, I researched autism like a man possessed. It held out a possible reason behind how I am. I was profoundly relieved to find out that my quirks, problems and limitations were not personal to me, but were characteristic of a whole community of people. Perhaps, if your husband is interested in finding reasons behind  the way he is, he might pursue a diagnosis with as much vigour as I did. If you have the finances, the route to a private diagnosis is much quicker and does not need a GP referral.