• Replies 12 replies
  • Subscribers 89 subscribers
  • Views 1740 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Can you help with advice for young people with Autism?

NAS82808
Hello,
My name is Jessie and I'm a speech and language therapist at a NHS mental health hospital in London. I work with young people and adults who have autism.
I am compiling a collection of advice that might be useful for young people to make sense of, or better understand their experiences. I also aim to dispel some of the common myths around autism, for example that people with autism lack empathy.

I want to ask if there is any advice that you wish you had been told as a child growing up, as a young adult or even now, or any experiences that you would like to share.

Please see below some of the questions from the young people I work with.

If you would like further information please feel free to contact me at: jessica.lee36@nhs.net

Many thanks,
Jessie

- Do you tell people / boss' that you have autism? How do you say it?
- Have you had any experiences with the emergency services? How was your experience and did you tell them that you have autism?
- Do you use public transport?
- Do you get annoyed when people say "I'm a bit autistic" or "everyone is on the spectrum" etc.
- Do you have repetitive thoughts and how do you deal with them?
- Do you have friends? Do you want friends?
Parents
  • NAS82808 said:
    - Do you tell people / boss' that you have autism? How do you say it?
    - Have you had any experiences with the emergency services? How was your experience and did you tell them that you have autism?
    - Do you use public transport?
    - Do you get annoyed when people say "I'm a bit autistic" or "everyone is on the spectrum" etc.
    - Do you have repetitive thoughts and how do you deal with them?
    - Do you have friends? Do you want friends?

    I was diagnosed at 59 shortly after taking early retirement - had I known I was autistic I would have informed my employers to get accommodations.

    Yes, my daughter had what turned out to be a perforated appendix. My interactions were fine, like some other autistics small irritations can throw me, but in genuine emergencies I am very calm. I did not know I was autistic at the time.

    Yes. I used the bus every working day. I coped fairly well, but crowded buses were unpleasant as I do not like physical contact with people I do not know well. I occasionally had to get off buses at random stops because someone's perfume was overwhelming.

    Depends on the context. As a scientist I know that people exist with autistic traits that are sub-clinical, who would not get a diagnosis, but are clearly 'a bit autistic'. However, if such phrases are used in an attempt to minimise the problems faced by clinically diagnosable autistic people, it would make me annoyed.

    No, I do not get repetitive thoughts. I do, however, sometimes get obsessed by specific subjects and research them obsessively.

    Yes I have friends, some of whom I have known since schooldays. 

Reply
  • NAS82808 said:
    - Do you tell people / boss' that you have autism? How do you say it?
    - Have you had any experiences with the emergency services? How was your experience and did you tell them that you have autism?
    - Do you use public transport?
    - Do you get annoyed when people say "I'm a bit autistic" or "everyone is on the spectrum" etc.
    - Do you have repetitive thoughts and how do you deal with them?
    - Do you have friends? Do you want friends?

    I was diagnosed at 59 shortly after taking early retirement - had I known I was autistic I would have informed my employers to get accommodations.

    Yes, my daughter had what turned out to be a perforated appendix. My interactions were fine, like some other autistics small irritations can throw me, but in genuine emergencies I am very calm. I did not know I was autistic at the time.

    Yes. I used the bus every working day. I coped fairly well, but crowded buses were unpleasant as I do not like physical contact with people I do not know well. I occasionally had to get off buses at random stops because someone's perfume was overwhelming.

    Depends on the context. As a scientist I know that people exist with autistic traits that are sub-clinical, who would not get a diagnosis, but are clearly 'a bit autistic'. However, if such phrases are used in an attempt to minimise the problems faced by clinically diagnosable autistic people, it would make me annoyed.

    No, I do not get repetitive thoughts. I do, however, sometimes get obsessed by specific subjects and research them obsessively.

    Yes I have friends, some of whom I have known since schooldays. 

Children
No Data