Lonely & Depressed

Hi I was diagnosed with ASD in 2011 aged 12. Since diagnosed with anxiety, ME/CFS & depression. Love most animals espc cows I think they're lovely creatures.

I'm an adult now and I have no one in my life who understands me or the things I experience with my ASD and my health problems. My family keep trying to talk to me and include me in family get togethers and they take me out in to town even though they know how it affects me. I'm tired of this and of all the struggles have to face every day. I've spoken to my doctor and I am on a waiting list to see a therapist now but I don't think he or she will understand what it's like to have ASD and my health problems. No one ever understands. My doctor said she did but I know she didn't. It just feels so lonely being like this. I can't make eye contact. I can't bring myself to go out and engage with others, even my family. There's always an awkward atmosphere. I can only wash a few minutes because my skin is so sensitive and I am at risk of falling asleep. Can't eat a lot and my eyes are sensitive to light. I'm sad because of this and I see my sisters who don't have my problems and they are both married and have children and jobs. I have very little, nothing like what they have. I'm in a wheelchair and my speech is rubbish I can't make sense of what I'm trying to say. My sisters kids seem to like me and happy to talk to me but they are the only ones.

I keep hoping it will get better but it never does. Every night I go to bed hoping tomorrow will be better. But so far it never has been.

Parents
  • I'm sorry to hear you are going through such a difficult time at the moment. It is hard being autistic and misunderstood by the majority of people, doctors especially. I can only imagine how much more difficult things are for you trying to cope with your physical health problems as well.

    Unfortunately as you have found hoping things will be better tomorrow rarely works and just sets yourself up for disappointment. 

    It sounds as if your family are trying to help you in the only way they know how, by including you in their trips to town and family get togethers. Towns and cities are often very stressful and overwhelming places for autistic people, far too much noise and too many lights. Similarly social gatherings are difficult in many ways. It may be hard for them to really understand how these things are affecting you negatively. They probably think that taking you out will help with your depression, it might but only if you get some enjoyments from the outings.

    As you find communication by speech difficult are there alternative ways you would find easier to communicate with your family? Maybe by text or email? Try to explain to your family the kinds of things you would love to do.

    Are there any city farm type places in your area? Also farm shops can be good places to visit, as they often have viewing areas where you can see and sometimes interact with the animals. You could research online for wheelchair accessible paths in your area or even quiet lanes adjoining fields where you could see some cows.

    It is good that you get on with your sisters kids. Do they share your love of animals? If so they might ask their parents to take them (and you) to the kinds of places where you can see animals.

    I like cows too and they often seem to take an interest in me. I find them quite scary sometimes, if they start moving towards me when I am walking through a field. I don't want to get trampled and I feel more relaxed when I know there is a fence or a wall in between me and them!

  • Hello, thanks for your reply and kindness :) 

    Life can be very hard and a little disappointing, lots of setbacks and hardly a step towards is just so depressing but I try not to linger on that now. I do wish doctors and just people in general were more understanding to what life is like for us. I see a lot of people and a nurse comes to see me weekly and she gets all huffy because of my speech difficulty and that makes me feel bad. I do try to explain but I think I make it worse.

    My family are lovely really I just get frustrated in situations I'm not comfortable in but I do appreciate their help and encouragement I just struggle with these events. I really wish we could live somewhere else where it's quieter and not so smelly and bright. I really struggle with car lights, they are so bright and from my wheelchair they often right in my eyesight and the worst is in winter they seem even brighter and it can cause meltdown it's horrible. Some of the outings are nice like if we go to the park and it's not very busy-but usually it will be my sister's who take me there. I like it because there's no cars, no lights and not the loudness of a shop.

    I have got a little notebook I can write in but my mum prefers me to try and use my voice I think she's hoping her encouragement will "fix" me? I'm not sure that's the feeling I get sometimes. I haven't said yet about doing things I'm more comfortable with I don't want to offend anyone or make them feel bad. But I will say at some point.

    Actually yes there is a local farm which I don't think is very far of but I don't know if it's public or if has disability access. Thanks for the suggestion though I will Google and see if it is :) I will look for farm shops as well. I have a feeling there is a farm shop nearby but I just can't think where like my brain has frozen now!

    I have such a great relationship with them especially my youngest niece her name is Jade she is just lovely and she loves cows as well and tigers, she is a fact machine on them can talk for hours about. Lovely girl. I will talk to them and see if they want to hopefully they will :) 

    It's cool you like cows as well :) they are curious aren't they love to watch people which I think might be intimidating at times. I like how they moo lol it's such an interesting sound. I feel happier with a fence between us though :) 

Reply
  • Hello, thanks for your reply and kindness :) 

    Life can be very hard and a little disappointing, lots of setbacks and hardly a step towards is just so depressing but I try not to linger on that now. I do wish doctors and just people in general were more understanding to what life is like for us. I see a lot of people and a nurse comes to see me weekly and she gets all huffy because of my speech difficulty and that makes me feel bad. I do try to explain but I think I make it worse.

    My family are lovely really I just get frustrated in situations I'm not comfortable in but I do appreciate their help and encouragement I just struggle with these events. I really wish we could live somewhere else where it's quieter and not so smelly and bright. I really struggle with car lights, they are so bright and from my wheelchair they often right in my eyesight and the worst is in winter they seem even brighter and it can cause meltdown it's horrible. Some of the outings are nice like if we go to the park and it's not very busy-but usually it will be my sister's who take me there. I like it because there's no cars, no lights and not the loudness of a shop.

    I have got a little notebook I can write in but my mum prefers me to try and use my voice I think she's hoping her encouragement will "fix" me? I'm not sure that's the feeling I get sometimes. I haven't said yet about doing things I'm more comfortable with I don't want to offend anyone or make them feel bad. But I will say at some point.

    Actually yes there is a local farm which I don't think is very far of but I don't know if it's public or if has disability access. Thanks for the suggestion though I will Google and see if it is :) I will look for farm shops as well. I have a feeling there is a farm shop nearby but I just can't think where like my brain has frozen now!

    I have such a great relationship with them especially my youngest niece her name is Jade she is just lovely and she loves cows as well and tigers, she is a fact machine on them can talk for hours about. Lovely girl. I will talk to them and see if they want to hopefully they will :) 

    It's cool you like cows as well :) they are curious aren't they love to watch people which I think might be intimidating at times. I like how they moo lol it's such an interesting sound. I feel happier with a fence between us though :) 

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