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Dangerous Interventions, What Can We Do to Stop Them?

Daniel

All over social media platforms I keep finding “cures” for autism being advertised with testimonials by parents that could be lies for all we know.

Another one showed up on my screen last night called “Stem Cell Therapy”, there’s no scientific evidence or medical research behind these interventions each time I research them, but there is evidence from past and present research that these interventions can cause great harm. That’s obviously why they share personal testimonials instead of medical evidence.

There’s numerous parents promoting and recommending these therapies all over autism forums, a friend contacted me and said parents in his FaceBook group keep bringing up “The Nemechek Protocol” which also has no evidence or medical research behind it. It’s surely dangerous to just go performing interventions on children which have no evidence to support their claims, is there anything we can do to expose to the public these “cures” are dangerous, and some even potentially life threatening?

I’m so concerned about the children who these may be used on, especially as some can be purchased from Amazon.

Parents

  • Had to google Nemechek protocol... Yet another address the gut to "cure" autism thing...grrrr

    Totally agree, a) autism doesn't need curing b) we still don't understand our brain/gut relationship well enough to give much credence to any if this anyway.

    Energy would be better focused on trying to understand why we tend to have gut problems and trying to address that just for our physical comfort.

    Personally, a comfortable gut I would welcome, but I doubt anything which achieves that would make anyone less autistic. After all, for all we have a bigger propensity to poorly guts, there are autistic people without digestive problems and NT people who likewise suffer with IBS and such.

    I am guessing that for all there may be a correlation between bowel problems and autism, there is unlikely to be causation. But, we have no real understanding so why market these things as a "cure"?

    And yes, some of these things might be harmful, either physically or psychologically. Even if this diet proves to be nutritionally harmless, these parents are speaking volumes to their kids about how they don't want them to be who they are.

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  • Had to google Nemechek protocol... Yet another address the gut to "cure" autism thing...grrrr

    Totally agree, a) autism doesn't need curing b) we still don't understand our brain/gut relationship well enough to give much credence to any if this anyway.

    Energy would be better focused on trying to understand why we tend to have gut problems and trying to address that just for our physical comfort.

    Personally, a comfortable gut I would welcome, but I doubt anything which achieves that would make anyone less autistic. After all, for all we have a bigger propensity to poorly guts, there are autistic people without digestive problems and NT people who likewise suffer with IBS and such.

    I am guessing that for all there may be a correlation between bowel problems and autism, there is unlikely to be causation. But, we have no real understanding so why market these things as a "cure"?

    And yes, some of these things might be harmful, either physically or psychologically. Even if this diet proves to be nutritionally harmless, these parents are speaking volumes to their kids about how they don't want them to be who they are.

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