Frustrated at the lack of support for mild ASD

It seems like everything here, is aimed at autistic people with learning difficulties, what I believe was once called "low functioning autism". What irks me the most is almost all autism support groups are run by neurotypicals. It's like setting up a gay and lesbian support group but having a straight guy run it, or a single mother support group and having a married dad run it. TBH, I'm incentivised to set up my own group and also go into workplaces and explain about ASD/ADHD as I have both and I've had a negative experieence from NT employers who want to "tick a box" by having an employee with a disability on their payroll, but then expect them to act exactly the same as all their other, non-disability employees. In the UK, we have the NHS and say what you want about socialised health care, but as far as autism and mental health is concerned,m its absolutely crap. The person I saw even though autism could be medicated (she wasn't an autism professional thankfully). They set up autistic "coping skills" sessions...in the middle of the working day, so again assuming we can't "cope" with a regular job. Then even when high functioning autism is concerned, people assume we all like D&D, don't want to go to bars or clubs, and have really defined special interests etc. I feel having ADHD as well as ASD makes ASD a really different condition to just ASD on its own as it essentialy means whilst I struggle socially, I'm very spontaneous as opposed to regimented and organised, impulsive, and sometimes agressive. I'm so frustrated, I feel completely alone. Honestly, had it not been for my parents and my persistent mental health issues owing to social isolation, I probably would have gone un-diagnosed, because people just assumed I was "shy" and "clever". That's how mild I am.

Parents
  • My husband is just coming to terms with the fact that he is probably ASD (mild, high functioning) he hasn't been assessed and I'm not sure he will be but because we are having our sons assessed for ASD & ADHD he is becoming more aware of his behaviours / traits. He is questioning everything about himself, both past and present and I think he would love to be able to speak to a "professional" about this as he probably wants validation or explanations as to why he behaves the way he does.  I can do this to some extent but I can't relate to many of his ways, but can perhaps understand it more now.  It can't be easy for him.

    I have told him that I find this community really helpful but I don't think it's something he would use.  I offer the advice I come across if I think it might help him.   I did find a couple of therapists via this website who specialise in ASD counselling services.  The first one wasn't great, didn't even get back to him about arranging an appointment, however the second one seems to be helping him to unpick things.  I don't know if this is something that's available on the NHS as it is costly, but it certainly should be.  Unfortunately the waiting times would probably be very long.  

    Hopefully in time, with more recognition and understanding there will be more support groups - if you do set up your own group let us know! 

Reply
  • My husband is just coming to terms with the fact that he is probably ASD (mild, high functioning) he hasn't been assessed and I'm not sure he will be but because we are having our sons assessed for ASD & ADHD he is becoming more aware of his behaviours / traits. He is questioning everything about himself, both past and present and I think he would love to be able to speak to a "professional" about this as he probably wants validation or explanations as to why he behaves the way he does.  I can do this to some extent but I can't relate to many of his ways, but can perhaps understand it more now.  It can't be easy for him.

    I have told him that I find this community really helpful but I don't think it's something he would use.  I offer the advice I come across if I think it might help him.   I did find a couple of therapists via this website who specialise in ASD counselling services.  The first one wasn't great, didn't even get back to him about arranging an appointment, however the second one seems to be helping him to unpick things.  I don't know if this is something that's available on the NHS as it is costly, but it certainly should be.  Unfortunately the waiting times would probably be very long.  

    Hopefully in time, with more recognition and understanding there will be more support groups - if you do set up your own group let us know! 

Children
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