Frustrated at the lack of support for mild ASD

It seems like everything here, is aimed at autistic people with learning difficulties, what I believe was once called "low functioning autism". What irks me the most is almost all autism support groups are run by neurotypicals. It's like setting up a gay and lesbian support group but having a straight guy run it, or a single mother support group and having a married dad run it. TBH, I'm incentivised to set up my own group and also go into workplaces and explain about ASD/ADHD as I have both and I've had a negative experieence from NT employers who want to "tick a box" by having an employee with a disability on their payroll, but then expect them to act exactly the same as all their other, non-disability employees. In the UK, we have the NHS and say what you want about socialised health care, but as far as autism and mental health is concerned,m its absolutely crap. The person I saw even though autism could be medicated (she wasn't an autism professional thankfully). They set up autistic "coping skills" sessions...in the middle of the working day, so again assuming we can't "cope" with a regular job. Then even when high functioning autism is concerned, people assume we all like D&D, don't want to go to bars or clubs, and have really defined special interests etc. I feel having ADHD as well as ASD makes ASD a really different condition to just ASD on its own as it essentialy means whilst I struggle socially, I'm very spontaneous as opposed to regimented and organised, impulsive, and sometimes agressive. I'm so frustrated, I feel completely alone. Honestly, had it not been for my parents and my persistent mental health issues owing to social isolation, I probably would have gone un-diagnosed, because people just assumed I was "shy" and "clever". That's how mild I am.

Parents
  • First - I feel this site is a little place where maybe some of us can offer a better perspective to parents. Outside of this, I am trying to find ways to disrupt ALL of autism research. 

    I'd be curious to chat more about the combo ADHD / Autistic Dx. 

    From my point of view, and those I've chatted with, add the ADHD individuals over the years who've always befriended me, or been drawn to me, they seem to be able to communicate fluidly with both Autistic and non-autistic individuals. What seems to connect us is our hyper-active full-brain thinking, a rich inner mind, full of chaos and connexion. However, ADHD individuals don't seem to mind external chaos while Autistics appear to despise it, or are even traumatised by it. A lack of filtering sensory information also seems to be the same, only ADHD individuals seem to be able to channel or arrest overload with a greater ability than Autistic peers. It seems that while there is overlap, how we deal with being human is different. Curious why you're also diagnosed as Autistic?

    I'm always looking to expand understanding of this!

Reply
  • First - I feel this site is a little place where maybe some of us can offer a better perspective to parents. Outside of this, I am trying to find ways to disrupt ALL of autism research. 

    I'd be curious to chat more about the combo ADHD / Autistic Dx. 

    From my point of view, and those I've chatted with, add the ADHD individuals over the years who've always befriended me, or been drawn to me, they seem to be able to communicate fluidly with both Autistic and non-autistic individuals. What seems to connect us is our hyper-active full-brain thinking, a rich inner mind, full of chaos and connexion. However, ADHD individuals don't seem to mind external chaos while Autistics appear to despise it, or are even traumatised by it. A lack of filtering sensory information also seems to be the same, only ADHD individuals seem to be able to channel or arrest overload with a greater ability than Autistic peers. It seems that while there is overlap, how we deal with being human is different. Curious why you're also diagnosed as Autistic?

    I'm always looking to expand understanding of this!

Children
  • Hi, ADHD and Autism are known to be frequently found in the same person. I have ADHD and I’m Autistic. Since you said you want to expand understanding, have a search for  ‘ADHD and Autism overlap’ or ‘co-occuring’ or something like that online. Lots of articles, studies and so on. Sometimes my ADHD is in the driver’s seat, sometimes autism. I think of both (maybe it’s my age) as much less rigid than you suggest - more like strong tendencies. But we’re all different, of course. There’s a Canadian lady on Youtube who is both autistic and has ADHD (can’t remember her name, unfortunately), but she talks eloquently about living with both, including the positives.