Advice scored 0 points on PIP assessment with autism and other disabilities

I've just received my decision letter. I scored 0 points despite living with autism, spine problems, severe osteoarthritis, anxiety and inflammatory bowel disease. Autism mainly effects social interaction and emotions. I have no friends, can't socialise and only drive locally. I also wear a prescribed knee brace and am waiting for a consultation for joint replacement.

The assessor decided that because I can drive, do short period of online voluntary work and am a carer for my ASD son that I do not meet any criteria. Also mentioned anxiety can't be an issue because I don't take drugs for it. I self referred to local mental health trust for therapy but ended up making a formal complaint as they missed calls. I tried medication years ago and ended up with heart palpitations and mood swings.

I've asked for a mandatory consideration as decision letter didn't even mention autism or my disabilities. It had duplicated text and mistakes in it and said I didn't mention difficulties during assessment. I did and we talked about pain, panic attacks and mobility problems.

I'm prepared to ho to tribunal just yo bring an end to the constant paperwork and to finally get a definite answer.

Parents
  • Get specialist advice from Citizens Advice or one of the big charities if there is one related to one of your medical conditions. The process is designed for you to fail so you really benefit from speaking to an expert. A few years ago something like 75% of cases that went to appeal - the stage after mandatory consideration - were won - so its really worth keep going with it, but expect it to be a long process. 

Reply
  • Get specialist advice from Citizens Advice or one of the big charities if there is one related to one of your medical conditions. The process is designed for you to fail so you really benefit from speaking to an expert. A few years ago something like 75% of cases that went to appeal - the stage after mandatory consideration - were won - so its really worth keep going with it, but expect it to be a long process. 

Children
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