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Advice scored 0 points on PIP assessment with autism and other disabilities

NAS80155

I've just received my decision letter. I scored 0 points despite living with autism, spine problems, severe osteoarthritis, anxiety and inflammatory bowel disease. Autism mainly effects social interaction and emotions. I have no friends, can't socialise and only drive locally. I also wear a prescribed knee brace and am waiting for a consultation for joint replacement.

The assessor decided that because I can drive, do short period of online voluntary work and am a carer for my ASD son that I do not meet any criteria. Also mentioned anxiety can't be an issue because I don't take drugs for it. I self referred to local mental health trust for therapy but ended up making a formal complaint as they missed calls. I tried medication years ago and ended up with heart palpitations and mood swings.

I've asked for a mandatory consideration as decision letter didn't even mention autism or my disabilities. It had duplicated text and mistakes in it and said I didn't mention difficulties during assessment. I did and we talked about pain, panic attacks and mobility problems.

I'm prepared to ho to tribunal just yo bring an end to the constant paperwork and to finally get a definite answer.

Parents

  • Thank you. That's a very sensible approach. I'm not really sure what I can't do. Make and keep friends is an obvious one. Follow diversions when driving. I only drive locally as get very stressed when in unknown areas. Change of car caused issues for three months :/. I can't read emotions and don't feel many emotions either but none of this seems very relevant. I suffer from overloads and switch off.

    I think it's held against me because I have a PhD. I kind of fell into it and managed to scrape through with no support or friends 

  • in reply to NAS80155

    I'm curious.

    I thought having a a PHD was practically like owning a small mint!

    Why would you need to interact with the eaters of souls who administer this particular benefit?

  • in reply to I Sperg

    I don't understand this comment. I haven't worked for ten years due to disability and caring for my ASD son. I used to earn less than graduate salary as I only felt comfortable in jobs where I wasn't responsible for anyone. I left my last job because I was bullied for being different and for time off due yo my disabilities. 

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  • in reply to I Sperg

    I don't understand this comment. I haven't worked for ten years due to disability and caring for my ASD son. I used to earn less than graduate salary as I only felt comfortable in jobs where I wasn't responsible for anyone. I left my last job because I was bullied for being different and for time off due yo my disabilities. 

Children
  • in reply to I Sperg

    I just think you have a weird idea of PhDs. If you have a PhD in a science subject, its highly likely you will get a very well paid job at the end of it, in fact you are probably on a very generous stipend to do the phD in the first place. If you are doing arts or humanities you are probably paying your own way and may well only get a not much above minimum wage job at the end of it unless you want to go into lecturing. 

  • in reply to NAS80155

    The game of "money & employment" seems to have certain rules and ways that things happen. 

    There are certain things one can do that seem to make the acquisition of enough money to live comfortably easier, and I based my question on the observation of two individuals had concluded that getting a PHD was one that worked really well. 

    Which it is of course for the NT's.

    If you are however painted with the same Autistic brush I am, then it really doesn't make any difference what you achieve does it? NT society still treats you like shoe scrapings..