Help me, I’m neurotypical!

My son is 11, and I love him endlessly. I’ve thought for a long time that he is likely Autistic, probably PDA, as well as having ADHD and possibly dyslexia. Trying to get him properly assessed is a nightmare, we went through the NHS 3 years ago, but because he was home-educated at the time and we had no back up from a school they decided it wasn’t Autism/ADHD, and advised me to put him into school. He chose to start school in Sept 2020, after all the home-Ed groups stopped, thanks to covid. The first year went soooo well! But this year there have been staff issues, other kid issues, his BFF left and he started refusing to go in…school have been so kind and supportive, and whilst school definitely is not working right now, tbh home-Ed wasn’t either! My son has been violent, depressed and  suicidal this year, and I’m desperate to help support him. I want to ask Autistic adults how important it was to them to get an official diagnosis, because it’s probably going to cost us about £3000 and my husband thinks it’s okay to go without (I don’t) and also, how lenient should I be about the fact that he wants to play Xbox for 10 hours a day?! Thanks in advance :) 

Parents
  • If he plays X box 10 hours for One day every other week, fine. But the rest of the week I might advise a time limit. However, I let my son play games all day when he's ill or with a broken leg. My father probably spends every evening after work till bed online gaming with 2 characters simultaneously. He doesn't need feel he needs a diagnostic, he's in demand, not retiring, the IT guy for a massive company and builds robots. His generation was different. If someone had more unusual quirks, they chalked it up to personality. Everyone learned basic manners and principles of kindness. Society has changed quite a bit and I believe it will be important for at least the next 20 years or until our western societies recognise that many social expectations and ways of communicating favour one neurotype.

    Gaming was part of our growing up. My brother is now in neurology, another works at a company similar to CERN. The Neurologist has a 2 hour/day time limit for his son during school days. 

    But, I will say, my son went through some really difficult times and his gaming was a bit of a lifeline. He goes through phases now (he's 25), if he feels he's obsessing over it more than things he knows he really loves, he'll have a friend come take it for a period of time to properly detox. but it does help our sometimes out of control, hyper-connected minds break from over-analysing the world around and trying to fix things well beyond our control. Instead of a screen full of puzzles and problems, I read philosophy in my downtime. The autistic mind doesn't disengage well and for reasons that make it really great. It has to do with how intensely we're impacted, how hyperconnected our neuro-circuitry can be, specific to gamma waves responsible for eureka moments and a flow-state: Monotropism. 

  • Sometimes I do it like your father, for months, 14h a day on multiple accounts playing an online game, but it's only passing fixation for me, until I exploit all possibilities I can think off

    Reading fiction was always a bigger passion, a way to relax and disconnect from a world around, ever since I discovered public library around 10y.o.

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