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NHS Autism assessment - what to expect?

Kate Kestrel

Hi all,

My appointment for my Autism assessment (with the NHS) is now getting close. I’ve been trying to not think about it but I really feel it’s so near now that Ireally should think about it. It’s online (on a zoom type thing)  and seems to be very long in terms of time - and I have absolutely no idea what to expect. Is it basically just a chat about life or are they actually going to give me tests of some kind? I really haven’t got a clue what to expect. 

How did other people find the NHS autism assessment for adults? And is it different for women? (I’m a woman and I’m in my fifties). 

thanks :) 

Parents

  • After an initial session to get my details and other medical issues, I had one session remotely about three hours long.  I also completed three questionnaires and they spoke to my parents  The private contractor used by the NHS was hopeless though - it took 12 months from the point of referral for them to have my diagnostic assessment appointment and then a further 12 months for them to get back to me with the outcome.  I thought that was extremely poor and the excuses of covid delays didn't cut it with me.  I believe the NHS has since rescinded the company's contract for diagnostic services.

    I would suggest that if you encounter unreasonable delays, consider making a complaint to the Care Commissioning Group in your area.  I suspect I would be still waiting for an outcome if I hadn't complained to the CCG.

  • in reply to Wombles

    probably why i never got anything back, they probably cancelled contract and lost all the data of the people on the waiting list. not bothered now, sorted my life myself to some degree, dont need their help no more. 

  • in reply to Caelus

    It wouldn't surprise me.  I won't name the organisation involved, but I found the experience to be very poor.

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