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NHS Autism assessment - what to expect?

Kate Kestrel

Hi all,

My appointment for my Autism assessment (with the NHS) is now getting close. I’ve been trying to not think about it but I really feel it’s so near now that Ireally should think about it. It’s online (on a zoom type thing)  and seems to be very long in terms of time - and I have absolutely no idea what to expect. Is it basically just a chat about life or are they actually going to give me tests of some kind? I really haven’t got a clue what to expect. 

How did other people find the NHS autism assessment for adults? And is it different for women? (I’m a woman and I’m in my fifties). 

thanks :) 

Parents

  • After an initial session to get my details and other medical issues, I had one session remotely about three hours long.  I also completed three questionnaires and they spoke to my parents  The private contractor used by the NHS was hopeless though - it took 12 months from the point of referral for them to have my diagnostic assessment appointment and then a further 12 months for them to get back to me with the outcome.  I thought that was extremely poor and the excuses of covid delays didn't cut it with me.  I believe the NHS has since rescinded the company's contract for diagnostic services.

    I would suggest that if you encounter unreasonable delays, consider making a complaint to the Care Commissioning Group in your area.  I suspect I would be still waiting for an outcome if I hadn't complained to the CCG.

Reply

  • After an initial session to get my details and other medical issues, I had one session remotely about three hours long.  I also completed three questionnaires and they spoke to my parents  The private contractor used by the NHS was hopeless though - it took 12 months from the point of referral for them to have my diagnostic assessment appointment and then a further 12 months for them to get back to me with the outcome.  I thought that was extremely poor and the excuses of covid delays didn't cut it with me.  I believe the NHS has since rescinded the company's contract for diagnostic services.

    I would suggest that if you encounter unreasonable delays, consider making a complaint to the Care Commissioning Group in your area.  I suspect I would be still waiting for an outcome if I hadn't complained to the CCG.

Children