Struggling with waiting for an answer

I'm currently on a waiting list for an assessment (one and a half years into a three year wait) and I'm struggling. I'm three weeks into a new job and I'm already identifying ways in which my potential autism is impacting my work. I've done hours and hours of research into autism and believe I'm on the spectrum. I've spoken to friends and family, people with autism, and I'm getting mixed messages. One person who works with autistic children thinks I'm not, but he's an online friend and I'm not a child, a relative who has worked with autistic children also doesn't think I'm on the spectrum but she rarely sees me. My flatmate who thinks they're autistic also doesn't think so. I've had autistic people who work for the organisation I'll be getting assessed by say I'm definitely autistic. I'm so confused and frustrated. I need to stop asking people. The thing is, if I'm not diagnosed with it, then what's going on with my brain? How am I supposed to explain my actions at work? If I'm not on the spectrum, how do I explain the sensory overloads I have, my sensory issues, all my special interests, the social things I don't understand, the fact that I can't stand eye contact and that too much eye contact makes me feel upset and overwhelmed, the excessive stimming (especially during certain emotions or anything relating to my special interests), sometimes I go mute or only make noises to communicate, my sensitivity to heat, the distress I feel with surprises and change and spontaneous activities being sprung on me, having to have my boss make a plan of every detail about our upcoming training in Leeds (the transport we're taking, the route, where toilets will be on the way, where we'll be stopping, who I'll be with, the location and where a quiet room will be, when things will be, when breaks will be, the list goes on and on), my sensitivity to lots of noise, certain noises and smells, my discomfort in shops that I've always struggled with, the list goes on. How do I explain all that if I'm not diagnosed? Maybe people just don't see half the stuff I experience but I'm so scared of not getting diagnosed. I don't know what to do about it... 

Parents
  • Hello Cameron,

    It can be so frustrating on not knowing what's going with yourself. I'm also sorry to hear others given you mixed feedback. First of all stop asking opinions from others, especially those who are not trained to assess you.

    To be honest even when you do get diagnosed, don't be shock to find out a couple of people might still not believe your autistic.

    Please don't worry about what may or may not happen with your diagnosis as it's not going to help you with your waiting process. It's best to start looking at things that can help you cope with your sensory overloads etc, even if your just self diagnosed, This forum is a great place to start and other sites with tips in how to cope.

    Concerning your work, if it's really affecting you and its noticeable to others, you could tell your manage privately that you could possibly be on the spectrum and your on the waiting list to be assessed. Or you can do what I did and I went to my Gp as I was going crazy and couldn't wait, so they also referred me to a therapist and I got diagnosed first with anxiety, which help my case a bit when I was at work, but also through my therapy, my therapist pushed to get my assessment assessed much quicker than I expected. Also she was a specialist is autsim and also referred me to a psychologist with my GP which was a bit hard at first, but everything got pushed because of her.

    So please don't overload yourself, you know you are struggling and the professionals will probably see it and you will get your diagnosis soon. 

Reply
  • Hello Cameron,

    It can be so frustrating on not knowing what's going with yourself. I'm also sorry to hear others given you mixed feedback. First of all stop asking opinions from others, especially those who are not trained to assess you.

    To be honest even when you do get diagnosed, don't be shock to find out a couple of people might still not believe your autistic.

    Please don't worry about what may or may not happen with your diagnosis as it's not going to help you with your waiting process. It's best to start looking at things that can help you cope with your sensory overloads etc, even if your just self diagnosed, This forum is a great place to start and other sites with tips in how to cope.

    Concerning your work, if it's really affecting you and its noticeable to others, you could tell your manage privately that you could possibly be on the spectrum and your on the waiting list to be assessed. Or you can do what I did and I went to my Gp as I was going crazy and couldn't wait, so they also referred me to a therapist and I got diagnosed first with anxiety, which help my case a bit when I was at work, but also through my therapy, my therapist pushed to get my assessment assessed much quicker than I expected. Also she was a specialist is autsim and also referred me to a psychologist with my GP which was a bit hard at first, but everything got pushed because of her.

    So please don't overload yourself, you know you are struggling and the professionals will probably see it and you will get your diagnosis soon. 

Children
  • Thank you so much for your reply, I really appreciate it :) I definitely need to stop asking what others think because it makes me spiral into an upset state. I have actually already told my boss and other staff and they're all super understanding and helping me as best they can, which is great. Your message has made me feel better, thank you