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For those diagnosed, what level are you?

Shardovan

...if you're comfortable saying. 

It occurred to me after just reading another post that maybe my Level One makes some off the things I say on here seem a bit OTT (it doesn't feel that way though!) if the majority are L2 or whatever and have more 'right' (stupid thinking I know) than me to be saying anything. What percentages/ratios predominate on here in terms of all this?

Paranoid thinking maybe, it gets the better of me sometimes. I just got a weird feeling of embarrassment that I may have presumed I belong somewhere I don't. I think it will pass, and thanks for undertanding my posting this even though I can sense it's (I think?) a bit skewed, having come up as a sudden fear that seems to be demanding early closure/external invalidation. My usual issue!

Parents

  • I wonder when diagnosticians started giving levels and what the guidance is for determining them.   I was diagnosed at the end of 2018 and it only confirmed that I'm autistic, although it did also include the ICD-10 code for Asperger's.  But I only got a brief letter and no report.  Feeling shortchanged.  

  • in reply to Jenny Butterfly

    Levels is a DSM-5 thing I think. We're in an odd position in the uk. For most things we'd use ICD-10 but the ICD-10 was dragging its heals over advances in understanding in autism so most diagnosis's refer to the criteria in the DSM-5. Now ICD-11 is a thing the NHS will gradually swap its reporting to the WHO (something its obligated by treaty to do) from ICD-10 to ICD-11. When that happens I expect DSM-5 will stop being used as a reference for uk autism assessments. ICD-11 also has subclasification codes but they're more for classifying intelligence and whether the autistic person is verbal / communicative or not. They're not intended to indicate a required level of support the way the DSM-5 levels are.

  • in reply to Peter

    That sounds a lot more appropriately nuanced. In one way I like the DSM 5 for not segmenting so much that you’re left feeling not autistic ‘enough’ (so to speak), but as someone for is functioning independently (I work, I pay a co-own mortgage, I don’t require a support worker of any kind) I sometimes feel a bit odd about that ‘everyone in all three levels requires support’ dimension not really being in play in my life. Am I the only one? 

  • in reply to Jenny Butterfly

    I'm definitely not un-traumatised! The last few years in particular have been a massive struggle mentally and emotionally. I suppose paying to see a therapist, and talking some things through with trusted people, etc. all counts as support. Those things are ongoing.

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