For those diagnosed, what level are you?

...if you're comfortable saying. 

It occurred to me after just reading another post that maybe my Level One makes some off the things I say on here seem a bit OTT (it doesn't feel that way though!) if the majority are L2 or whatever and have more 'right' (stupid thinking I know) than me to be saying anything. What percentages/ratios predominate on here in terms of all this?

Paranoid thinking maybe, it gets the better of me sometimes. I just got a weird feeling of embarrassment that I may have presumed I belong somewhere I don't. I think it will pass, and thanks for undertanding my posting this even though I can sense it's (I think?) a bit skewed, having come up as a sudden fear that seems to be demanding early closure/external invalidation. My usual issue!

Parents
  • I wonder when diagnosticians started giving levels and what the guidance is for determining them.   I was diagnosed at the end of 2018 and it only confirmed that I'm autistic, although it did also include the ICD-10 code for Asperger's.  But I only got a brief letter and no report.  Feeling shortchanged.  

  • Levels is a DSM-5 thing I think. We're in an odd position in the uk. For most things we'd use ICD-10 but the ICD-10 was dragging its heals over advances in understanding in autism so most diagnosis's refer to the criteria in the DSM-5. Now ICD-11 is a thing the NHS will gradually swap its reporting to the WHO (something its obligated by treaty to do) from ICD-10 to ICD-11. When that happens I expect DSM-5 will stop being used as a reference for uk autism assessments. ICD-11 also has subclasification codes but they're more for classifying intelligence and whether the autistic person is verbal / communicative or not. They're not intended to indicate a required level of support the way the DSM-5 levels are.

  • That sounds a lot more appropriately nuanced. In one way I like the DSM 5 for not segmenting so much that you’re left feeling not autistic ‘enough’ (so to speak), but as someone for is functioning independently (I work, I pay a co-own mortgage, I don’t require a support worker of any kind) I sometimes feel a bit odd about that ‘everyone in all three levels requires support’ dimension not really being in play in my life. Am I the only one? 

  • I'm definitely not un-traumatised! The last few years in particular have been a massive struggle mentally and emotionally. I suppose paying to see a therapist, and talking some things through with trusted people, etc. all counts as support. Those things are ongoing.

  • Probably not.  But I imagine it depends upon the environment and how safe and confident you feel.  And you might be that rare animal, an untraumatised autistic person. 

    I seemed to  function independently for most of my adult life (incl. jobs, mortgages, marriage etc), but often things would come crashing down around me when I failed to deliver on something apparently easy and obvious.  And, although I had the trappings of conventional success, my inner world was something else entirely.  

    I think it can be complicated.   

Reply
  • Probably not.  But I imagine it depends upon the environment and how safe and confident you feel.  And you might be that rare animal, an untraumatised autistic person. 

    I seemed to  function independently for most of my adult life (incl. jobs, mortgages, marriage etc), but often things would come crashing down around me when I failed to deliver on something apparently easy and obvious.  And, although I had the trappings of conventional success, my inner world was something else entirely.  

    I think it can be complicated.   

Children