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Late diagnosis.

Campervanmad

Hi. I’m not very good at this. 
I was diagnosed last week in my late 50s and after going through a long process. I’m not sure what to do now. I’m confused and feel my life up until now has been an act. I am married and have been for 30 years. I have told 5 people only and so far they’ve not changed toward to me which is good but the closest ones have just said to carry on as “normal”. My GP is still waiting on the notes too so I’ve not had any offer of any support as of yet, if you get any that is. I can feel myself getting even more withdrawn than normal as I simply don’t mix at all. My husband is my friend and he is the only one I see daily. My head feels like it’s full of words swirling around but I can’t land in any to say how I feel. It’s like cotton wool. 
What do we do after diagnosis. I don’t work as it all got too much a few years ago. I also have fibro. Do I just carry on or what…I’m feeling very confused but the diagnosis also answers my difficulties too. Not sure this makes sense. 

Parents

  • 35yr diagnoses myself just over a month ago it is so confusing i keep thinking back to old scenarios i went through thinking how did i manage and then other scenarios that make absolute sense because of what i know now it explains so much and at the same time feels like such a struggle for no reason i feel its equivalent to playing a game on hard mode then switching it to easy after discovering you can in fact change the settings. what i think would be helpful is joining an online group of people that enjoy your hobbies ie campervans etc its worth a punt 

  • in reply to Buggsy

    Thank you. Yes I feel the same but I’m on that journey now so just need to hold on.

    I’m in a couple of vanning groups on Facebook but have got myself into strife a couple of times by commenting what I thought was correct…..turns out I was a bit cutting. I got warnings. I was also even an admin but had to stop as I got constantly picked on by another admin. I had to do what was right for me and just stop. 

  • in reply to Campervanmad

    i think that is part of our nature the bluntness i am constantly getting told by my work to just "try not to speak much until people get used to you" but i work in construction so it might be a different ball game everyone is abrupt on site haha I found a good way to think about things is how would i react if someone said what am saying to them but to me and if i don't like it i will just reword the post or comment it has helped a few times but also a lot can be misconstrued in text, you might not have meant something to be cutting but they took it that way regardless. keep it up and i wouldn't just stick to your local area or even country hobbies are usually globally appreciated 

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  • in reply to Campervanmad

    i think that is part of our nature the bluntness i am constantly getting told by my work to just "try not to speak much until people get used to you" but i work in construction so it might be a different ball game everyone is abrupt on site haha I found a good way to think about things is how would i react if someone said what am saying to them but to me and if i don't like it i will just reword the post or comment it has helped a few times but also a lot can be misconstrued in text, you might not have meant something to be cutting but they took it that way regardless. keep it up and i wouldn't just stick to your local area or even country hobbies are usually globally appreciated 

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