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Late diagnosis.

Campervanmad

Hi. I’m not very good at this. 
I was diagnosed last week in my late 50s and after going through a long process. I’m not sure what to do now. I’m confused and feel my life up until now has been an act. I am married and have been for 30 years. I have told 5 people only and so far they’ve not changed toward to me which is good but the closest ones have just said to carry on as “normal”. My GP is still waiting on the notes too so I’ve not had any offer of any support as of yet, if you get any that is. I can feel myself getting even more withdrawn than normal as I simply don’t mix at all. My husband is my friend and he is the only one I see daily. My head feels like it’s full of words swirling around but I can’t land in any to say how I feel. It’s like cotton wool. 
What do we do after diagnosis. I don’t work as it all got too much a few years ago. I also have fibro. Do I just carry on or what…I’m feeling very confused but the diagnosis also answers my difficulties too. Not sure this makes sense. 

Parents

  • I was also diagnosed late (37).  I don't think there is much support available for us, sadly.

    It did take me a long time to process the diagnosis, even though it was something I'd been trying to get for some time and was not unexpected.  It did feel odd to look back on my life in the context of now knowing I was on the spectrum.  I don't think that makes my earlier life an act, though.  I was really trying to do the right thing, even if my brain was not always cooperating for reasons that I understand now.

    If you can't find the words to speak about how you feel, have you tried writing them?  You don't have to show anyone.

Reply

  • I was also diagnosed late (37).  I don't think there is much support available for us, sadly.

    It did take me a long time to process the diagnosis, even though it was something I'd been trying to get for some time and was not unexpected.  It did feel odd to look back on my life in the context of now knowing I was on the spectrum.  I don't think that makes my earlier life an act, though.  I was really trying to do the right thing, even if my brain was not always cooperating for reasons that I understand now.

    If you can't find the words to speak about how you feel, have you tried writing them?  You don't have to show anyone.

Children