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Late diagnosis.

Campervanmad

Hi. I’m not very good at this. 
I was diagnosed last week in my late 50s and after going through a long process. I’m not sure what to do now. I’m confused and feel my life up until now has been an act. I am married and have been for 30 years. I have told 5 people only and so far they’ve not changed toward to me which is good but the closest ones have just said to carry on as “normal”. My GP is still waiting on the notes too so I’ve not had any offer of any support as of yet, if you get any that is. I can feel myself getting even more withdrawn than normal as I simply don’t mix at all. My husband is my friend and he is the only one I see daily. My head feels like it’s full of words swirling around but I can’t land in any to say how I feel. It’s like cotton wool. 
What do we do after diagnosis. I don’t work as it all got too much a few years ago. I also have fibro. Do I just carry on or what…I’m feeling very confused but the diagnosis also answers my difficulties too. Not sure this makes sense. 

Parents

  • Well done for being proactive and posting about it! I think acknowledging that there has been a change in yourself can help move on from it. 

    I've just received my diagnosis at 28 and have similar feelings about my past and what to do with myself now I know more about myself. 

    One thing I have done is starting to let myself off for some things i.e not being very social, I won't ever be and have stopped beating myself up over it. Also looking at perhaps what things you could change to make yourself more comfortable - what things irk you that before you didn't know why. 

    Obviously writing on a forum is a good way to vent and explore too Blush

Reply

  • Well done for being proactive and posting about it! I think acknowledging that there has been a change in yourself can help move on from it. 

    I've just received my diagnosis at 28 and have similar feelings about my past and what to do with myself now I know more about myself. 

    One thing I have done is starting to let myself off for some things i.e not being very social, I won't ever be and have stopped beating myself up over it. Also looking at perhaps what things you could change to make yourself more comfortable - what things irk you that before you didn't know why. 

    Obviously writing on a forum is a good way to vent and explore too Blush

Children
  • in reply to ProbablyTheWay

    Yes I think you’re right….I need to forgive myself but expecting others to do the same is another thing, even now when they now know my diagnosis. I do say inappropriate things at times and misunderstand so respond accordingly and so do they so why should I be surprised. It certainly explains behaviours and reactions all through my working career. Not sure how I would have coped being diagnosed while still working. I don’t think they’d have been to caring even though it was the caring profession. Hopefully others will come to terms with my diagnosis and realise what it means because at the moment I’m not so sure.