I thought I was special! (no but seriously...)

Not really sure how to articulate what's bothering me so much right now, but it may help to try and do so. Here

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So, I got my assessment in early Jan, the result (confirmed Level One) in early Feb, and have been feeling relief above all else about that making sense of things for me. I'm 44 and have felt different, been easily exhausted, etc. all my life. 

I was giving myself  a very hard time for a few years there feeling like an underachiever in life, and now I think instead that I've done well. I have a job, it's a really good fit, I have my own house, I live independently, I manage my mental health struggles and anxiety about as well as could be reasonably expected.

And key to relaxing a bit on all of this has been realising that I'm something like a societal 1 in 100 - I can be different because I am different, it's how I was made, who I am. I work in a profession (libraries) though where I think that my workplace probably has a few more '1 in 100's  (diagnosed or otherwise) in it than most others. I think I did the right amount of calibrating this in my head to come up with a reasonably accurate figure of something more like 1 in 30 in the place who know thay're autistic (either through diagnosis like me, or having been sufficiently affected day to day to at least suspect it). And maybe about 1 in 3-5 others will at some point have joked about being 'on the spectrum', but only in a half-serious way at most. 

After dipping into the online community a bit (here, and also YouTube vids from Aucademy), being open about being diagnosed autistic seems to be the consensus best thing to do for taking pressure off oneself and making a small contribution to societal progress/acceptance of neurodivergence. So I sent an email round my particular dept. mentioning it, explaining why I was doing so, etc. To their credit, I got only nice and sensitive responses, and appropriately it hasn't otherwise been talked about since as there's been no real need. 

An additional  positive for me out of that was feeling understood, it being apppreciated why not seeking future promotion is in my case a healthy and sensible thing, etc. A recognition that I'm doing the best I can, and what's right for me, with keeping the stability/continuum that I have. 

Cut to today, and meeting a returning colleague and friend (he'd tried a different job he didn't like and comeback to - essentially- his old one) for a lunchtime walk/chat. I mention to him my diagnosis, and he says 'oh, my brother has that, and I think I probably do too. Also, I'm fairly sure my dad does.' While I didn't show it outwardly, this triggered me: here I am, having found peace in my neurodivergent scarcity, and literally the person stood next to me is also autistic, and at least two of his family. So suddenly it feels commonplace, and that  I've been letting myself off the hook too lightly. Which, rationally, is insane - probability easily allows for two '1- 100's to be in the same place at the same time, and it doesn't magically make the other 99% of society magically transform into autistic people too. So why am I still so unsettled by it? Is it a childish impulse to want to be special? Or is it that I now have to start re-running the mathes on this to check whether I thought I was rarer (even in my profession) than I actually am? And do I now have to start saying, well if we're all autistic (maybe) then perhaps I am, once again, an underachiever, since there are library staff at all grades/levels, including managerial posts? 

As I type all that, I'm not sure how rational/irrational I'm being in getting so jittery and uncomfortable about it - just because of one conversation with someone who is enough of a kindred spirit that what he said oughtn't to have been a surprise anyway. But typiong this helps try and get a handle on what I'm feeling. It's almost a mutation of the 'imposter syndrome' feelings I was getting a few weeks back, but with a different flavour. The fact that this has consumed my thoughts for an hour (preventing me from getting focussed on work tasks again) probably tells me all I need to know about the authenticity of my own autistic experience (like the diagnosis wasnt enough!), and I'm probably just feeling a bit off-balance today and letting paranoia make e feel like the butt of a cosmic joke. When I look back at this post in a while, maybe I'll shake my head and think 'what was I on about'? Does this kind of all-consuming spiral make sense to anyone else here? And am I OK in feeling that I still did the right thing in 'coming out' even though, here at least, maybe I'm nothing 'specail' enough to warrant it? 

Parents
  • A lot of this resonates with me.  I'm another librarian by training, although I've struggled with employment because of my autism and related mental illness episodes, as well as a terrible job in the wrong library sector (a very noisy and busy further education college library -- not a great fit for me, but I didn't know I was on the spectrum when I applied) and am not currently working as a librarian.  Good for you for finding the right job and being able to stick with it and live your life independently!  I think it is hard to do that.  Even in a more autism-friendly sector, there are obstacles to navigate.

    In terms of not feeling special on the spectrum, I have had that experience too, particularly when I'm confronted with someone who is clearly on the spectrum, but manifests in a very different way to me.  The feeling of "What does this mean for my self-image?  Are there lots of people like me, even people I don't like?  Am I not special?"  Years of not fitting in turned being different into a part of who I am.

    My fiancee is actually beginning to suspect that she is neurodivergent (maybe autism, maybe ADHD) and I definitely felt a little resistance to her self-exploration at first -- not a lot, but a sense of "This is MY area!"  It passed very quickly, though, and now I just want her to feel comfortable with who she is.  It would explain why we have so much in common, though.

    (Also, as a Doctor Who fan, I now understand your choice of user-name!)

  • Apologies for my lateness in replying. It's been in my mind to do so for several days, as I really aappreciated you saying it strikes a chord, and having the library qualification in common is really nice too. May I ask if you ever got into a professional post, even briefly? I got the PostGrad Diploma years ago but ultimately a permanaent place in a higher-stress (part-management) role doesn't suit me. I was a cataloguer for a time, which means I technically ticked that 'used the qualification' box, but otherwise feel I function best at the grade I'm at. Hope that doesn't make me a loser! I have to stop thinking of it that way. Even an NT person is allowed to choose not to take on what they know will put too much presuure on them, and as I'm wired differently too...?  

    I work in a busy academic library too, which certainly has its noisy moments, but there's enough balance in what I do (a lot of time in the office, some on the enquiry desk) to keep overwhelm at bay for the most part. I used to work in a much busier part of the building, and while I enjoyed the work and helping people, I did run my batteries down massively each day. 

    Yes, my user-name felt very appropriate - and comes from my all-time favourite Who story. Autism is, I suspect, quite a bit more prevalent in DW fandom than it is in the general population! I've seen at least one other user-name here inspired by it, and it's lovely to know that you're a fan too. It's a life-long addiction, and definitely the 'specialist interest' that's always been there for me, and always will. :-)

Reply
  • Apologies for my lateness in replying. It's been in my mind to do so for several days, as I really aappreciated you saying it strikes a chord, and having the library qualification in common is really nice too. May I ask if you ever got into a professional post, even briefly? I got the PostGrad Diploma years ago but ultimately a permanaent place in a higher-stress (part-management) role doesn't suit me. I was a cataloguer for a time, which means I technically ticked that 'used the qualification' box, but otherwise feel I function best at the grade I'm at. Hope that doesn't make me a loser! I have to stop thinking of it that way. Even an NT person is allowed to choose not to take on what they know will put too much presuure on them, and as I'm wired differently too...?  

    I work in a busy academic library too, which certainly has its noisy moments, but there's enough balance in what I do (a lot of time in the office, some on the enquiry desk) to keep overwhelm at bay for the most part. I used to work in a much busier part of the building, and while I enjoyed the work and helping people, I did run my batteries down massively each day. 

    Yes, my user-name felt very appropriate - and comes from my all-time favourite Who story. Autism is, I suspect, quite a bit more prevalent in DW fandom than it is in the general population! I've seen at least one other user-name here inspired by it, and it's lovely to know that you're a fan too. It's a life-long addiction, and definitely the 'specialist interest' that's always been there for me, and always will. :-)

Children
  • I did have a couple of professional posts, one in a small higher education college, which suited me until my mental health issues made things too difficult to stay (at the time I didn't know my mental health issues were probably autistic burnout), and one in a further education college which did not suit me at all.

    I don't think there's anything wrong with staying in a post where you feel comfortable and I certainly wouldn't say it makes you a loser!

    I agree about autism being more prevalent in fandom.  When I was an undergraduate, I was quite involved in my university's DW Society.  I didn't know much about autism then, but in retrospect there were definitely some other people there who showed signs of being on the spectrum.