I thought I was special! (no but seriously...)

Not really sure how to articulate what's bothering me so much right now, but it may help to try and do so. Here

goes...

So, I got my assessment in early Jan, the result (confirmed Level One) in early Feb, and have been feeling relief above all else about that making sense of things for me. I'm 44 and have felt different, been easily exhausted, etc. all my life. 

I was giving myself  a very hard time for a few years there feeling like an underachiever in life, and now I think instead that I've done well. I have a job, it's a really good fit, I have my own house, I live independently, I manage my mental health struggles and anxiety about as well as could be reasonably expected.

And key to relaxing a bit on all of this has been realising that I'm something like a societal 1 in 100 - I can be different because I am different, it's how I was made, who I am. I work in a profession (libraries) though where I think that my workplace probably has a few more '1 in 100's  (diagnosed or otherwise) in it than most others. I think I did the right amount of calibrating this in my head to come up with a reasonably accurate figure of something more like 1 in 30 in the place who know thay're autistic (either through diagnosis like me, or having been sufficiently affected day to day to at least suspect it). And maybe about 1 in 3-5 others will at some point have joked about being 'on the spectrum', but only in a half-serious way at most. 

After dipping into the online community a bit (here, and also YouTube vids from Aucademy), being open about being diagnosed autistic seems to be the consensus best thing to do for taking pressure off oneself and making a small contribution to societal progress/acceptance of neurodivergence. So I sent an email round my particular dept. mentioning it, explaining why I was doing so, etc. To their credit, I got only nice and sensitive responses, and appropriately it hasn't otherwise been talked about since as there's been no real need. 

An additional  positive for me out of that was feeling understood, it being apppreciated why not seeking future promotion is in my case a healthy and sensible thing, etc. A recognition that I'm doing the best I can, and what's right for me, with keeping the stability/continuum that I have. 

Cut to today, and meeting a returning colleague and friend (he'd tried a different job he didn't like and comeback to - essentially- his old one) for a lunchtime walk/chat. I mention to him my diagnosis, and he says 'oh, my brother has that, and I think I probably do too. Also, I'm fairly sure my dad does.' While I didn't show it outwardly, this triggered me: here I am, having found peace in my neurodivergent scarcity, and literally the person stood next to me is also autistic, and at least two of his family. So suddenly it feels commonplace, and that  I've been letting myself off the hook too lightly. Which, rationally, is insane - probability easily allows for two '1- 100's to be in the same place at the same time, and it doesn't magically make the other 99% of society magically transform into autistic people too. So why am I still so unsettled by it? Is it a childish impulse to want to be special? Or is it that I now have to start re-running the mathes on this to check whether I thought I was rarer (even in my profession) than I actually am? And do I now have to start saying, well if we're all autistic (maybe) then perhaps I am, once again, an underachiever, since there are library staff at all grades/levels, including managerial posts? 

As I type all that, I'm not sure how rational/irrational I'm being in getting so jittery and uncomfortable about it - just because of one conversation with someone who is enough of a kindred spirit that what he said oughtn't to have been a surprise anyway. But typiong this helps try and get a handle on what I'm feeling. It's almost a mutation of the 'imposter syndrome' feelings I was getting a few weeks back, but with a different flavour. The fact that this has consumed my thoughts for an hour (preventing me from getting focussed on work tasks again) probably tells me all I need to know about the authenticity of my own autistic experience (like the diagnosis wasnt enough!), and I'm probably just feeling a bit off-balance today and letting paranoia make e feel like the butt of a cosmic joke. When I look back at this post in a while, maybe I'll shake my head and think 'what was I on about'? Does this kind of all-consuming spiral make sense to anyone else here? And am I OK in feeling that I still did the right thing in 'coming out' even though, here at least, maybe I'm nothing 'specail' enough to warrant it? 

Parents
  • Autistic people can get stuck on thinking about the same thing, especially if it we can't make sense of something.  There is also thought-loops (perserveration), where you literally  can't stop thinking about something for a while and 'disappear', but maybe not that in your case.

    Its personal choice to come out, but at work colleagues may already suspect anyway so not always that risky.

    Just to say that 1 in 100 is only a measure of those diagnosed, then you have to include those that chose not to be diagnosed but could be, then those that should be diagnosed but can't because of various barriers, women/girls who don't quite fit the male skewed way to measure autism, then those from ethnic groups who may have extra barriers to diagnosis or fear consequences due to cultural reasons, and probably others.

    Rare, special?  Not really, neurodiversity is everywhere but usually hidden - way more than the odd ones that stand out.

Reply
  • Autistic people can get stuck on thinking about the same thing, especially if it we can't make sense of something.  There is also thought-loops (perserveration), where you literally  can't stop thinking about something for a while and 'disappear', but maybe not that in your case.

    Its personal choice to come out, but at work colleagues may already suspect anyway so not always that risky.

    Just to say that 1 in 100 is only a measure of those diagnosed, then you have to include those that chose not to be diagnosed but could be, then those that should be diagnosed but can't because of various barriers, women/girls who don't quite fit the male skewed way to measure autism, then those from ethnic groups who may have extra barriers to diagnosis or fear consequences due to cultural reasons, and probably others.

    Rare, special?  Not really, neurodiversity is everywhere but usually hidden - way more than the odd ones that stand out.

Children
  • I absolutely recognise that description of the all-consuming loop causing me to 'disappear' into myself - even if I might be outwardly doing a draining and pronbably unconvincing impression of still being tuned into the other goings-on around me. I wonder what the true numbers are though? I think Dawn must have it right that it's more than the diagnosed stats (which for L1 seem to be 1 in 150ish if I can trust certain online sources), but it can't be close, societally, to 1 in 20 or anything quite so common (yet). So, would - for 'Aspergers' specifically - something more like 1 in 40-50 sound right? For this present moment in history, and taking a fair age range of adults into account?