Suffering daily, could this be autism?

Hello, I am in my 40’s and have always struggled with life, daily. I don’t completely understand why but have always felt like an alien observing a different species when in a group of people. I just cannot quite connect. Although I’m uncomfortable I do now make effort to talk to people (e.g. colleagues, mums at playgroup) but realise the vast majority of people don’t take to me like others even though I do try to be kind. I have only made this change during 30’s after I taught myself eye contact and learnt what to do and say when first meeting people. It is after this I struggle, with what to do next to maintain friendships.

My job is within an emotionally caring profession and I get good feedback from clients that I am empathetic and help them but I realise that is a role. I am usually more empathetic if I have been through similar experience. When it comes to socialising/making friends I just can’t seem to do it even though I try and think I want it. This has been my whole life. I also feel distant and unsure about my family and struggle with family functions. They are all kind and accept this now.

I am pretty rigid with my days and get very upset if something goes wrong, e.g. I can’t find a bowl or glass I usually use and can become hysterical, angry, feeling utterly devastated at this type of thing. My husband to be (finally met someone late 30’s and had a baby) is wonderful but I cannot gain any comfort from him, will push him away, swear, hit myself and can only calm down alone in a quiet room. 

I have only just started to explore this over the past year but have been wondering whether this could be autism. This knowledge could reframe my entire life that I have spent feeling isolated, confused, sectioned during 20’s in mental health hospitals for being suicidal (no longer suicidal)… I have read about autism and don’t have any typical special interests apart from practising the piano keenly and loving to study, especially psychology. When I was a child, I didn’t talk at playgroup (nursery) and struggled with friendships and bullying at primary school. Always felt different and alone. Again, no special interest apart from practising piano. I also enjoyed locking myself away and writing for hours, mainly from stuff I’d already read or seen but I did make some stuff up. I also participated in some imaginative play with my siblings, although it was pretty structured with me in control. I did not line things up or watch things spin, have a special topic, etc

I am sensitive to smells and certain tastes, been fussy with food since a baby. I jump sometimes at sounds others haven’t noticed and wear sunglasses all year round. Not sure why the glasses, just feel better protected and panic with out them.

I will stop there, although there is more. I feel pretty low at the moment, the not knowing what’s wrong with me is awful. Any advice/opinions/similar experiences would be appreciated. I did post something similar elsewhere in another forum but don’t think it was the right place. It’s a big step for me to ask for help. Thank you. 

Parents
  • The best thing to do before going down the diagnosis route is to complete some, or all, of the standard autism tests, they are all available to complete online. the AQ10 and AQ50 tests seem to be the most used by clinicians, though the RAADS-R test appears to give a more definitive yes/no answer to the question, "Am I autistic?"

  • Thank you. I am completely new here and didn’t expect so many replies so thank you.

    I have taken some online tests and I score pretty highly.

    It would be a huge relief to have a explanation for my “mini breakdowns” as they have been called. After I recovered (somewhat) from my depression and left the mental health services, I could never understand why I still flipped out and got so distraught/angry/nasty at times/hit myself/felt like dying. Seemingly out of the blue at times. I’d feel so ashamed afterwards and it seemed a cop out that I could not control these unbearable feelings. However, I genuinely feel I can’t do anything bar remove myself from everyone, which I do now. I only heard of the term “meltdown” last year and was astounded to think that’s what these episodes might be. After, analysing it, mine are often triggered by misunderstandings in communications (I can’t bear it when I can’t dissect exactly what someone means or they are vague, I get so upset and slap my face) but also other things including unplanned change, losing a familiar item,  having been with a big group of people such as a family do, after work, etc. The episodes more often happen at home or in the car. I’m thinking these could be meltdowns. Thank you for taking the time to read. 

  • Yes, you are not alone, I have been known to hit myself in the head and bite my hand when in a meltdown. It fixes the unendurable feelings of being overwhelmed by emotions, or sensory overload. Luckily it happens very rarely to me.

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