Suffering daily, could this be autism?

Hello, I am in my 40’s and have always struggled with life, daily. I don’t completely understand why but have always felt like an alien observing a different species when in a group of people. I just cannot quite connect. Although I’m uncomfortable I do now make effort to talk to people (e.g. colleagues, mums at playgroup) but realise the vast majority of people don’t take to me like others even though I do try to be kind. I have only made this change during 30’s after I taught myself eye contact and learnt what to do and say when first meeting people. It is after this I struggle, with what to do next to maintain friendships.

My job is within an emotionally caring profession and I get good feedback from clients that I am empathetic and help them but I realise that is a role. I am usually more empathetic if I have been through similar experience. When it comes to socialising/making friends I just can’t seem to do it even though I try and think I want it. This has been my whole life. I also feel distant and unsure about my family and struggle with family functions. They are all kind and accept this now.

I am pretty rigid with my days and get very upset if something goes wrong, e.g. I can’t find a bowl or glass I usually use and can become hysterical, angry, feeling utterly devastated at this type of thing. My husband to be (finally met someone late 30’s and had a baby) is wonderful but I cannot gain any comfort from him, will push him away, swear, hit myself and can only calm down alone in a quiet room. 

I have only just started to explore this over the past year but have been wondering whether this could be autism. This knowledge could reframe my entire life that I have spent feeling isolated, confused, sectioned during 20’s in mental health hospitals for being suicidal (no longer suicidal)… I have read about autism and don’t have any typical special interests apart from practising the piano keenly and loving to study, especially psychology. When I was a child, I didn’t talk at playgroup (nursery) and struggled with friendships and bullying at primary school. Always felt different and alone. Again, no special interest apart from practising piano. I also enjoyed locking myself away and writing for hours, mainly from stuff I’d already read or seen but I did make some stuff up. I also participated in some imaginative play with my siblings, although it was pretty structured with me in control. I did not line things up or watch things spin, have a special topic, etc

I am sensitive to smells and certain tastes, been fussy with food since a baby. I jump sometimes at sounds others haven’t noticed and wear sunglasses all year round. Not sure why the glasses, just feel better protected and panic with out them.

I will stop there, although there is more. I feel pretty low at the moment, the not knowing what’s wrong with me is awful. Any advice/opinions/similar experiences would be appreciated. I did post something similar elsewhere in another forum but don’t think it was the right place. It’s a big step for me to ask for help. Thank you. 

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  • I also think you sound like you're on the spectrum.  In terms of not having special interests, lining up toys etc., most people don't exhibit all possible autistic symptoms, so I wouldn't see that in itself as significant.  It sounds like you do still have a lot of autistic traits.  I agree that the not knowing is hard to cope with.

  • Thank you both for your replies. I have been considering seeking diagnosis, privately. However, there is a fear if it comes back that I am not autistic then I lose all hope of understanding what I am. So much seems to fit but I realise there is a chance I have got things wrong.  I think about diagnosis constantly and do not know what to do. 

  • I find it highly unlikely it will come back as you don't have autism.  Although Aspergers as a diagnosis seems to have disappeared to be replaced with ASD, it sounds like that is what you have.  You sound quite high functioning.

    Also, worst case they say you dont have autism, so what.  It's better to have someone say it isn't something, than not know full stop.  At least if they say no, you can then rule it out.  I honestly think you have ASD based on what you've said, so I wouldn't worry about it.

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  • I find it highly unlikely it will come back as you don't have autism.  Although Aspergers as a diagnosis seems to have disappeared to be replaced with ASD, it sounds like that is what you have.  You sound quite high functioning.

    Also, worst case they say you dont have autism, so what.  It's better to have someone say it isn't something, than not know full stop.  At least if they say no, you can then rule it out.  I honestly think you have ASD based on what you've said, so I wouldn't worry about it.

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