When you first

When you were first diagnosed, especially late diagnosed, what were the main consequences for you

Parents
  • Age 55.  Main consequences for me:

    - more insight, understanding and awareness of why things have turned out the way they have

    - greater knowledge, a more positive sense of identity 

    - more idea about where to look for relevant information, instead of circling around all the same self help ideas again and again

    - knowing my limitations, what is likely to change and what isn't

    - better able to support my now adult family

    Some negatives include waves of anger over being  identified so late in life, especially since this wasn't for want of trying to find help.  And especially the severe consequences for my family, resulting from not realising that we are neurodivergent, therefore parenting and schooling in ways that weren't ND friendly and not knowing how to support them until lots of damage had already built up.  I still don't know where to turn for help with unpicking all of this, to my constant regret. 

    Although some of this relates to my family rather than myself, the old adage that a parent can only be as happy as their most miserable child often rings true for me.  

Reply
  • Age 55.  Main consequences for me:

    - more insight, understanding and awareness of why things have turned out the way they have

    - greater knowledge, a more positive sense of identity 

    - more idea about where to look for relevant information, instead of circling around all the same self help ideas again and again

    - knowing my limitations, what is likely to change and what isn't

    - better able to support my now adult family

    Some negatives include waves of anger over being  identified so late in life, especially since this wasn't for want of trying to find help.  And especially the severe consequences for my family, resulting from not realising that we are neurodivergent, therefore parenting and schooling in ways that weren't ND friendly and not knowing how to support them until lots of damage had already built up.  I still don't know where to turn for help with unpicking all of this, to my constant regret. 

    Although some of this relates to my family rather than myself, the old adage that a parent can only be as happy as their most miserable child often rings true for me.  

Children
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