To undiagnosed adults or those diagnosed in adulthood: How did you realize you might be autistic?

Why did you begin to research/consider autism in the first place? What made you want to get tested?

Parents
  • Through catastrophic breakdowns (= autistic burnouts or catatonia) in a number of close relatives.  It took me ages to join the dots and realise that there was something familial going on and, by the time I did, lots of needless damage had occurred.  Only after several decades of such things did any MH professional utter the word "autism" and I still find it hard to understand how we flew beneath the radar for so long, often getting blamed or marginalised for our differences.  :(

Reply
  • Through catastrophic breakdowns (= autistic burnouts or catatonia) in a number of close relatives.  It took me ages to join the dots and realise that there was something familial going on and, by the time I did, lots of needless damage had occurred.  Only after several decades of such things did any MH professional utter the word "autism" and I still find it hard to understand how we flew beneath the radar for so long, often getting blamed or marginalised for our differences.  :(

Children
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