Update to self advocacy-Mental Health

Well that went down like a lead balloon.

nervous as heck telling the MH coordinator that I don't get feelings or emotions, that I had to be honest with myself that I had been masking as I was scrambling to meet expectations like we do when confronted with NT's and he gets all defensive? Throws it back at me saying well it was led by you, denied saying certain things to me, (I photographic memory me) and he just wouldn't accept the concept of alexithymia or understand neurodiverse processing...so i handed him the new strategy and NAS mental health update booklet, said there's training on the NAS website if there is funding for it, and left.

I feel insulted I think? that i know myself better than anyone else and he wasn't really listening to what I was saying, and started with the same old patter that every session started with...if it was led by me it would be autisticly modified not neurotypical led.

  • Agreed. I think I dented his ego pointing out he didn’t see the masking, not my place to educate him like I tried. I think he was out of his depth.

  • He sounds like he would benefit from extensive retraining. The problem with the whole field of MH is that it is populated largely by mediocre, or less than mediocre practitioners—and there is hardly any scrutiny of their patient outcomes unlike other medical fields. We have to remember that it's only relatively recently that these people entered this profession and that the default treatment of intimidate, sedate and isolate has only recently been replaced by the medicate and equivocate model. You can probably count on both your hands the actual number of highly skilled and experienced mental health specialists in the UK.  Unfortunately and sadly the only way for patients to be guaranteed a quality service is to use a shame and blame approach, which is not only exhausting, but not always possible with mental ill health. Unless of course you are a wealthy patient and can afford to search out the best practitioners with proper psychological educational pedigrees and not Mickey Mouse Diplomas in counselling.

  • I gave him the booklet link and new strategy outline before I left. Hope he reads them, I tried to educate him but I got the impression he was trying to justify his methods separating my autism and that cannot be done. In earlier sessions I tried to explain its autism first then trauma that overlays it as trauma to us is processed differently he insisted it was trauma that made me like this….due to vulnerability and naivety in social situations….how many auties fall into this NT theory does more damage than help.

  • I'm sorry to hear that. It can be very distressing when confronted with a bad practitioner. The NAS have just released new guidelines for MH Workers who are working with autistic clients. It remains to be seen whether any of them will make the effort to read and follow them.

  • I have a therapist with a one track mind, she gets fixated on an idea and will not let it go. She has that stereotype tone of voice that makes her sound patronising. She's not great, but better than the previous whose attitude was you had to do, or talk about what he told you, regardless of how upsetting or difficult it might be. A case of do as you're told.

  • If it's any consolation, it's not personal—even though it feels that way. It's an instinctive response that enables them to preserve their status. If you can keep this in mind, it helps to lessen the blow.

  • I feel the same way with my ex-Landlady from Dublin; who demanded that I take the Vaccinations for Covid - even though I oppose them. (It's not like I'm galavanting about the place)

    This was a well-travelled, and cultured, woman as well. Yet, for her, TV is never wrong. Disappointed

    All I can do is pray for her, to save myself from anger.

  • Exactly what happened. I wanted a month break to process but he ended just like that…not what I expected from a mental health professional who knows I have issues with abandonment….just proved to me that I can’t trust People with my internal life. It also showed me that if you divert from their expectations and are totally honest they can’t handle it. Makes me feel physically sick, I was honest and got dumped…again.

  • I'm sorry to hear that HB, but I'm not surprised. I almost commented on your last post to warn you against bringing up the issue with them on your own. I've tried a couple of times to let certain so-called professionals know about my condition with the same results. I found the only way to approach them and to get a decent service is to initially involve an autism advocate to support me. It gives them the opportunity to prepare, I guess. Otherwise, they will get very defensive and try to deflect any criticism. 

  • sorry to hear that, hope you get the help you need