Autism Stole my Life

By the time I was 13 years old I knew that I would forever be alone--- no spouse, no "girlfriends," no hope for romance, and no hope for love. This was obvious because I knew I was the only orange monkey in the monkey cage, and I was brutalized because I was (and am) "strange."

If I were capable of feeling hate I would write "I hate being autistic."

I do, however, utterly detest being autistic: autism has robbed me of my life. Autism took from me the chance of finding a woman who found me worthy of standing by her side, as two equal partners. What autism left for me in exchange was 61 years of a loneliness so suffocating, so ravenous, so crushing of spirit that I longed for death --- only my brother's compassion stayed my hand.

I loathe my inability speak nouns and pronouns when I am talking with people face to face: the Anomic Aphasia kicks in and I struggle to say the names of objects (that includes humans) , nor the names of places. My mind knows the word but I cannot speak it: try having a successful job interview when the evaluator believes you are on drugs--- I sound like I am choking because I am.

I abhor my inability to remember something that I heard mere seconds ago.

I deplore the way I rock side to side when I sit; rock on my feet side to side when standing in line at the grocery store; spinning on my heals to release some of the anxiety I collect when I am among the humans.

A few days ago (Monday June 14, 2021) my councilor (via telephone) told me that I "still have around twenty years left; there is still time to find love." I shivered with dread. I do not want to live another twenty years with painful eyes because I am required to look at people's eyes (it is agony for me). Twenty more years of strangers insisting that I must "shake hands." Twenty more years of strangers calling me by my first name--- as if we were already intimate.

Twenty more years of being macerated in the vicious jaws of loneliness.

It is a wonder that I have not been driven insane. Yet.

Parents
  • Hi David,

    I read your post earlier today and had to think about what to say in reply.  If you'll excuse the irony, I was there lost for words.  Sometimes there just isn't a lexicon big enough, or precise enough, to express how a thing affects you.  I still don't have the right word...but your post has affected me deeply.

    I wish I could just throw out a big ball of universal love in your direction in the hope that you might catch it and that it might comfort you.  I think we've all had it hard in some ways; many of us have craved and needed more space alone than most of humanity, and yet have been lonelier than most of humanity; many loving with all our hearts, in spite of it all, the fellow beings who we can't quite connect with and sometimes reject us. Reading both your post and your comments below, you seem to have walked a harder, lonelier road than most and seem to be experiencing something like that a little keener than most.

    Some words from a poem my son wrote in his teens come come to mind.  I'll leave them with you, you might relate:

    "Stutters have fluidity; silent thoughts, a euphony

    I'm reading Life's biography; that I might write its eulogy".

    I'm crying.  Thank you.  I've felt so numb for so long.

  • That is a beautiful poem, though "dark." Your son sees the world as it really is, and I believe that trait is rare.

    You are certainly correct, in my opinion, that many autistic people try to join group events (birthday party; barbecue; book club; coworker's events like the company picnic; the list is endless), then long to leave. After they leave, they go back to the event and try again to participate--- and do this a dozen times or so before just giving up.

    There was a woman that I loved with a passion that burned from my toes upward. I was aflame with the overwhelming need to feel her naked body in my arms; to feel her breath on my face as we slept; to feel her warm womanhood wrapped around me when we awake. I kept my desire a secret, as I detected no such feelings within her. It was both delight and torture when I saw her daily....

    ... and then, when we were at a coffee shop, I had a chocolate mocha and she drank something with coffee in it. We sat face-to-face at a small table, talking about current events and what we shared a liking for: books, music, paintings, and the like.

    After our drink we went outside and it was time for us to depart to our houses. She stood about three feet away from me, looked me in the eyes, and told me that while we were seated together, all she was really thinking about was to lick the chocolate off of my lips.

    She was inviting me to kiss her, but I did not know that until many months later. I just stood there and nodded, with a little smile on my face. I had no idea at all why she said what she had.

  • Oh David! How long ago? I have to wonder whether she still thinks of you. 

  • Gosh, she is married now with two children. I think she thought my ignorance and inexperience was disinterest.

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