Refused the right to stay with my son.

Refused the right to stay with my son. Hi everyone, I’m in a bad situation, my 24-year-old son has autism, he is nonverbal and suffers from anxiety and other mental health problems. He has the mental age of a toddler. He was admitted to hospital because of breathing issues, they wouldn’t let me stay with him despite the fact he cannot speak or even understand why he is there. He is severely distressed and can’t calm down so he's been sedated but soon gets distressed again, he has no idea what is happening to him and I feel powerless. In all the years he has never been away from me or my wife. Has anyone else been through something like this? There should always be an exception to the rule. I'm so stressed over it. I've ordered lanyards and organized relevant paperwork to hopefully prove to them how much he needs a carer with him at all times, I can't think of anything else to do.

Parents Reply
  • Unfortunately people like your son are barely even an afterthought under this government. I spent most of the pandemic as a social worker for adult social care and many of the adults had dementia, so they faced this same distressing scenario for hospital and care home admissions. My father-in-law moved into residential care with dementia in November and Sunday was the first day he has been allowed to leave the home to see us, and we still cannot freely visit him despite so many other areas of life relaxing. 

    I've left adult social care largely because of this reason. It isnt a system that I believe in and it was making me extremely unhappy. 

Children