Do You Embrace Autism?

Ever since I were 2 years old the NHS has viewed me as one of the most severely disabled people in the UK. Due to this, just about everyone doubted me, and attempted to discourage me, even today the NHS themselves struggle to believe what I’ve accomplished in my life. 

I believe what has helped me make my achievements is embracing my Autism instead of suppressing it, I share my view with people and they claim they’ve never looked at it my way, shows just how effective having a different perspective and way of thinking of the world can be. 

I simply viewed Autism as an adjective instead of a disability, an adjective that describes my brain. I ask people why they view Autism as a tragedy and disability, I always get answers like “because it gives you limitations and disadvantages.” I then ask them “doesn’t every human have limitations and disadvantages?” They confess yes then I say “so isn’t humanity a disability?” They say No, I then tell them “Exactly, Autism, ADHD, Down Syndrome, Dyslexia and any other brain is part of The Human Spectrum, not a Malfunctioning Human Spectrum. I always tell them they are not “able”, they are “en-abled” and I’m “differently-abled”.

I love the positive neurological differences, and I believe it’s these differences like hyper focusing, special interests, critically detailed, awareness, not so easily driven away from my goals, concentrate for longer periods of time, perseverance and not so disturbed by what people think about me. Embracing these aspects, putting them to use is what’s helped me strive to reach my goals. I think it would be great if Autistic children could be more encouraged and taught about their strengths instead of been lead to believe Autism is only negative making them sabotage themselves.

Would you like to share what you like about your form of Autism or your child’s form of Autism and how you embrace it.

Parents
  • Honestly no. I don't embrace autism as a term. I embrace me, I am more than a label. And thats all autism is, a convenient label to explain to people how I'm different from them. I think I've always known I'm different from other people, probably at least since I was old enough to know other people was a thing. I have always been the alien, the outsider. I grew up finding things others never master incredibly easy and things almost everyone masters impossibly hard. Most kids grow up thinking they are smarter than most of the adults around them but I knew it in an objective sense. I knew I could adsorb complex structured and relational information faster than them and retain it more easily. I could see patterns were they couldn't, string together chains of events to predict outcomes they couldn't. I just couldn't understand why they were mad at me so often. I never needed a word to know I'm different.

    Having the word hasn't made me feel better about myself or made others more understanding. I don't particularly feel I've found a like minded community either. I find I'm very different to most other autistic people. Most autistic people I've met are highly introverted and many of them are almost apologetic for their autism. I find this frustrating. So many of my nerdy friends from the old days used to be lively outgoing people who liked interacting in large groups. Going out, events, activities, excitement, and now they are positive home bodies. People talk about autistic support groups etc but if autistic support group means group of people who want to hide in a quiet corner because the world is too noisy I'm quite certain I'd be a bad fit.

    The truth is autism is only useful to me as a label. I've I'd had that label in education I might, just might, have been able to trade upon it to get some of the flexibility and rule bending that might have allowed me to be around more young people growing up and reach my potential faster. Autism is only useful to me now on the same basis, I know if there is a horrible cockup at work I can lean upon it to get some latitude for misunderstandings and personality clashes with colleagues, thankfully that's not been necessary in my current job. In principal I should be able to lean upon it in the same way in social services (by which I mean services designed to facilitate social interaction not government social services). A kind of oil to lubricate interactions, a piece of paper to wave at people to remind them they are dealing with a metaphorical alien. Normal is not a reasonable expectation to have. Beyond that I'm not sure it does me much good.

  • Peter,

    How exactly would you explain and describe why you can do things that others are not and never will be capable of? 

    How will you explain why there's certain areas in life you struggle with but others don't seem to?

    If someone asked you "why can you focus for so long?" what would you say?

    Introversion is a stereotype and people become introverted because the public will not accept them. If NDs can't accept neurodiversity how is the public going to do so?

  • These days I might indeed use the term autistic to explain these things to people, the point I’m making is I don’t need that word to explain it to myself. Autism can not tell me who I am. And I find myself very different from most people who wear that label openly. That may party be because those who do are undergoing periods of high stress and difficulty.
    It’s been my observation that a lot of high functioning autistic people only get their diagnosis in adulthood when they encounter serious difficulties in life. Serious difficulty’s can change a person, make them quiet or timid ... for myself I refuse to change. I intend to be the same noisy outward looking person I ever was.
    Most of the ND adults I know have settled into very insular routueen lives where they only have regular social contact with a small group of people often in a very predictable setting. A lot of them have significant others around whom their social lives revolve.
    You used to see them in night clubs, at concerts or out with 30+ people in a pub. Doing activities in big noisy groups... now they maybe have 1 activity they do religiously with the same small group of people.
    One or two have become total shut ins. They almost never see anyone other than their significant others.
    You understand what I’m saying? Autism is just a label and that cuts both ways. It brings some understanding but also miss-understanding, bias and bad stereotypes. I embrace me, the way I am. That doesn’t mean I have to embrace the paths others autistic people take in life or the expectations others have of them.
  • A good community is not an argumentative community

    Actually I disagree. argument is the refining fire through which we improve our ideas. civil and courteous argument has value, is necessary and is to be strongly encouraged.

  • Peter,

    A good community is not an argumentative community, like others in this thread you could of said no and why instead of changing the discussion to labels, I required the adjective for people to know what I meant.

    If you interpreted me correctly you would of known I were simply asking people if they like their Autism and why.

    I wrote why I like my Autism and why. That's what this discussion is, you are obliged to not cause trouble in discussions by bringing up things that have nothing to do with the discussion as you've done so. If you want to start a discussion on something else that's nothing to do with what the author is saying you start a separate discussion in a separate thread.  

    If you disagree with something you’re welcome to share your point of view, but you are not welcome to disrespect another’s point of view trying to have theirs seen as flawed as you’ve done so by choosing to start an argument. 

  • allow me to be specific. I saw several different strands and points in your posts. I don't believe I misinterpreted them or pretended I didn't know what they meant. I simply ignored the points you were making and issues you touched upon that i thought were less interesting in favour of those I found more interesting. It just so happened that those were points you felt were irrelevant (or less relevant). But I'm under no obligation not to argue with you if I think there is a point worth arguing (provided I do it respectfully)

  • Peter,

    You're the one who began arguing, like others you could of just not responded if you disagree instead of start an argument. If you know what something means you shouldn't be deceitful and pretend you don't know what it means.

  • I didn't. I just chose to point out something tangental (but to my mind more important) to the main thrust of your argument,

  • Peter,

    Then why intentionally misinterpret my post? 

  • Everyone’s brain is labelled and has to be

    Look we're mostly arguing semantics here but I think this is the one point of contention upon which we genuinely disagree. Labels are not obligatory, sometimes they are useful, and sometimes not. Just like shoe sizes. Sometimes useful, sometimes not, never obligatory. You can go into a shop and when they ask you what shoe size you are hold out your hands and go 'about this big.' You can use a different sizing system like I'm a 9 in a us, or a supper specific sizing system like a 10G. You can say I'm about a 10 in brand x and a nine in brand y. You can buy custom shoes, shoe makers aren't even forced to give their shoes designated sizes. There was a time when no shoes had sizes and most shoes were custom.

    It's the same for autism. We used to have aspergers and autism, before that we just had 'he's a bit of a weirdo', now we have autism and autistic spectrum condition, some people want to add pathological demand avoidance to the mix. There is no one right system for measuring neurological weirdness, some labels are more or less useful situationally but in terms of your own thinking you can get by perfectly well with out the label and in many ways you will know yourself better with out the label because lables tend to generalise and obscure detail.

  • Peter,

    Why do you keep telling me what I’m telling you?

    Everything is labelled, everyone’s brain is in a condition, the condition of your brain is your brain, and that condition is labelled Autism. Everyone’s brain is labelled and has to be, labels are reference points. 

    If someone autistic is unsuitable to work because of Autism how can they explain their difficulties if there’s no adjectives or label to explain it?

    If your brain was not labelled Autism and you do anything the majority does not do like stimming, if an employer asks you why are you stimming how can you explain without your brain labelled Autism? You wouldn’t be able to, so they’ll just think you’re incapable and childish then sack you.

    An individual with ADHD, if their brain was not labelled ADHD and they get hyperactive how are they going to explain themselves?

    Do you have an autistic brain? If yes, your brain is in an autistic condition. 

    I were talking specifically about an autistic brain, would I writing “Do you embrace your brain?”, people wouldn’t know what that means. Your brain is your neurodevelopment, is your neurodevelopment yours? Is your neurodevelopment labelled Autism? If yes, your neurodevelopment is your Autism.

    Answer this question; why have doctors labelled your brain autistic?

  • Autism is the condition of your brain

    No. Autism is a label used by doctors to describe the condition of my brain and many others brains. My shoe size is 10. Does that tell you if my feet smell? Sometimes I fit in a 9. Sometimes I need a size 11. A label or categorisation of that kind is a subjective nebulous concept. The label autism is, to a degree, an oversimplification for lazy minds and situations with limited data. I'm not embarrassed to be called autistic. I'm concerned that people read too much into that word sometimes. Treat it like an absolute, monolithic concept. You can paint as many rainbows as you like on things but people, even doctors, will tend to draw unjustified assumptions and treat labels as absolutes.

  • Peter,

    Our neural pathways is part of our neurodevelopment, Autism is a neurodevelopmental condition. Autism is the condition of your brain, of your neurodevelopment. And as you said, the neural pathways create the traits, neurodevelopment creates the neural pathways, your neurodevelopment is described as Autism.

    Neurotypical is the condition of the majority of brains. Their neurodevelopment is typical.

    Don’t you know the meaning of the neurodiversity movement logo? The infinity shape full of various colours.

    You use your brain to make choices, it’s your choices that make you who you are. Autism is your brain, so if you don’t embrace Autism (your brain), you don’t embrace yourself. That’s why I wrote “do you embrace YOUR Autism”.

     If you won’t even embrace the condition of your brain, you certainly don’t embrace yourself.

  • Respectfully I do say to you you still don't seem to understand my point. What is autism? A set of variant neural pathways, a certain combination of mutant genes? Autism isn't classified that way. It's a cluster of associated traits. Whether a certain person measures as autistic or not might depend on the system used to measure them, the mood they are in on the day measured, the way the doctor subjectively interprets the test.

    Retts syndrome used to be diagnosed as autism, not any more, Do you think someone with retts or fragile x syndrome has much in common with what you or I experience? It's posable that quite different variations in neural pathways give rise to very different experiences of the world that are all called autism because they share a few common traits doctors have decided should be lumped together but to a degree that choice of traits is subjective.

    Your thinking is back to front. Autism doesn't give you hyper focus, hyper focus in connection with a few other traits is what causes you to be categorised as autistic. The condition of your mind, your neurology, exists independently of the classification which is to some degree arbitrary. You sit in a very wide and convoluted cluster embedded in a high dimensional space of neurological traits.

    In fact one of the things that defines autism is how wide and varied the presentation is compared to the anticipated norm. But clustering is inherently subjective. How close do two clusters have to be before they are 1? How far from the cluster do you have to be before you are an outlier? It's subjective. The pattern of neurological traits you personally experience are objective, at least by comparison.

    I think sometimes we are so keen to emphasise what autistic people have in common we forget that maybe sometimes the differences are more important. Because being different not just from normal people, but also from each other, is part of what being autistic is all about. That's what it truly means to be on the spectrum.

Reply
  • Respectfully I do say to you you still don't seem to understand my point. What is autism? A set of variant neural pathways, a certain combination of mutant genes? Autism isn't classified that way. It's a cluster of associated traits. Whether a certain person measures as autistic or not might depend on the system used to measure them, the mood they are in on the day measured, the way the doctor subjectively interprets the test.

    Retts syndrome used to be diagnosed as autism, not any more, Do you think someone with retts or fragile x syndrome has much in common with what you or I experience? It's posable that quite different variations in neural pathways give rise to very different experiences of the world that are all called autism because they share a few common traits doctors have decided should be lumped together but to a degree that choice of traits is subjective.

    Your thinking is back to front. Autism doesn't give you hyper focus, hyper focus in connection with a few other traits is what causes you to be categorised as autistic. The condition of your mind, your neurology, exists independently of the classification which is to some degree arbitrary. You sit in a very wide and convoluted cluster embedded in a high dimensional space of neurological traits.

    In fact one of the things that defines autism is how wide and varied the presentation is compared to the anticipated norm. But clustering is inherently subjective. How close do two clusters have to be before they are 1? How far from the cluster do you have to be before you are an outlier? It's subjective. The pattern of neurological traits you personally experience are objective, at least by comparison.

    I think sometimes we are so keen to emphasise what autistic people have in common we forget that maybe sometimes the differences are more important. Because being different not just from normal people, but also from each other, is part of what being autistic is all about. That's what it truly means to be on the spectrum.

Children
  • A good community is not an argumentative community

    Actually I disagree. argument is the refining fire through which we improve our ideas. civil and courteous argument has value, is necessary and is to be strongly encouraged.

  • Peter,

    A good community is not an argumentative community, like others in this thread you could of said no and why instead of changing the discussion to labels, I required the adjective for people to know what I meant.

    If you interpreted me correctly you would of known I were simply asking people if they like their Autism and why.

    I wrote why I like my Autism and why. That's what this discussion is, you are obliged to not cause trouble in discussions by bringing up things that have nothing to do with the discussion as you've done so. If you want to start a discussion on something else that's nothing to do with what the author is saying you start a separate discussion in a separate thread.  

    If you disagree with something you’re welcome to share your point of view, but you are not welcome to disrespect another’s point of view trying to have theirs seen as flawed as you’ve done so by choosing to start an argument. 

  • allow me to be specific. I saw several different strands and points in your posts. I don't believe I misinterpreted them or pretended I didn't know what they meant. I simply ignored the points you were making and issues you touched upon that i thought were less interesting in favour of those I found more interesting. It just so happened that those were points you felt were irrelevant (or less relevant). But I'm under no obligation not to argue with you if I think there is a point worth arguing (provided I do it respectfully)

  • Peter,

    You're the one who began arguing, like others you could of just not responded if you disagree instead of start an argument. If you know what something means you shouldn't be deceitful and pretend you don't know what it means.

  • I didn't. I just chose to point out something tangental (but to my mind more important) to the main thrust of your argument,

  • Peter,

    Then why intentionally misinterpret my post? 

  • Everyone’s brain is labelled and has to be

    Look we're mostly arguing semantics here but I think this is the one point of contention upon which we genuinely disagree. Labels are not obligatory, sometimes they are useful, and sometimes not. Just like shoe sizes. Sometimes useful, sometimes not, never obligatory. You can go into a shop and when they ask you what shoe size you are hold out your hands and go 'about this big.' You can use a different sizing system like I'm a 9 in a us, or a supper specific sizing system like a 10G. You can say I'm about a 10 in brand x and a nine in brand y. You can buy custom shoes, shoe makers aren't even forced to give their shoes designated sizes. There was a time when no shoes had sizes and most shoes were custom.

    It's the same for autism. We used to have aspergers and autism, before that we just had 'he's a bit of a weirdo', now we have autism and autistic spectrum condition, some people want to add pathological demand avoidance to the mix. There is no one right system for measuring neurological weirdness, some labels are more or less useful situationally but in terms of your own thinking you can get by perfectly well with out the label and in many ways you will know yourself better with out the label because lables tend to generalise and obscure detail.

  • Peter,

    Why do you keep telling me what I’m telling you?

    Everything is labelled, everyone’s brain is in a condition, the condition of your brain is your brain, and that condition is labelled Autism. Everyone’s brain is labelled and has to be, labels are reference points. 

    If someone autistic is unsuitable to work because of Autism how can they explain their difficulties if there’s no adjectives or label to explain it?

    If your brain was not labelled Autism and you do anything the majority does not do like stimming, if an employer asks you why are you stimming how can you explain without your brain labelled Autism? You wouldn’t be able to, so they’ll just think you’re incapable and childish then sack you.

    An individual with ADHD, if their brain was not labelled ADHD and they get hyperactive how are they going to explain themselves?

    Do you have an autistic brain? If yes, your brain is in an autistic condition. 

    I were talking specifically about an autistic brain, would I writing “Do you embrace your brain?”, people wouldn’t know what that means. Your brain is your neurodevelopment, is your neurodevelopment yours? Is your neurodevelopment labelled Autism? If yes, your neurodevelopment is your Autism.

    Answer this question; why have doctors labelled your brain autistic?

  • Autism is the condition of your brain

    No. Autism is a label used by doctors to describe the condition of my brain and many others brains. My shoe size is 10. Does that tell you if my feet smell? Sometimes I fit in a 9. Sometimes I need a size 11. A label or categorisation of that kind is a subjective nebulous concept. The label autism is, to a degree, an oversimplification for lazy minds and situations with limited data. I'm not embarrassed to be called autistic. I'm concerned that people read too much into that word sometimes. Treat it like an absolute, monolithic concept. You can paint as many rainbows as you like on things but people, even doctors, will tend to draw unjustified assumptions and treat labels as absolutes.

  • Peter,

    Our neural pathways is part of our neurodevelopment, Autism is a neurodevelopmental condition. Autism is the condition of your brain, of your neurodevelopment. And as you said, the neural pathways create the traits, neurodevelopment creates the neural pathways, your neurodevelopment is described as Autism.

    Neurotypical is the condition of the majority of brains. Their neurodevelopment is typical.

    Don’t you know the meaning of the neurodiversity movement logo? The infinity shape full of various colours.

    You use your brain to make choices, it’s your choices that make you who you are. Autism is your brain, so if you don’t embrace Autism (your brain), you don’t embrace yourself. That’s why I wrote “do you embrace YOUR Autism”.

     If you won’t even embrace the condition of your brain, you certainly don’t embrace yourself.