Adult female diagnosis - mum doesn't think I had many childhood traits

Hello. I am an adult female (35) and think I might be autistic and have self-referred to my local autism service. They sent me 3 questionnaires to fill so I did mine (the EQ and AQ tests) which came out with a high likelihood of autism. But my mum filled out the CAST questionnaire for childhood autistic behaviours/traits and I scored quite low on that and my score indicated low or no autistic traits. I have just posted these off and am now waiting to hear.

I am wondering if this will affect the chances of me getting diagnosed with autism. I am worried that based on this CAST questionnaire I will be refused an appointment for diagnosis. My mum just seems to think I was a quiet and shy little girl but that I did very well in school, had no learning disabilities, had friends and had no problems with eye contact, strange behaviours, adherence to routines, etc. I just think my mum probably can't remember what I was like as I am 35 now and it's probably all a bit hazy, either that or she just didn't think any behaviours I did have were unusual (when actually they were!). I also think that the CAST questionnaire focusses on stereotypically male autistic traits.

I think I have so many autistic traits now as an adult woman (including social anxiety, general anxiety, obsessions, rigid thinking, resistance to change, and problems sticking to education and employment) that I am very doubtful that I had so few traits as a child.

Does anybody here have any experience of adult female diagnosis and problems with the developmental history part, especially perhaps with parents not thinking you are autistic or that you had any traits as a child? Would a low CAST score on its own be enough to refuse a diagnosis appointment or do they take into account current traits?

Thanks!

Parents
  • I don't think a parent's input is necessary for a diagnosis - I didn't have to do that, but I am estranged from my parents. A lot of the time, girls' traits don't get picked up because autistic girls tend to be quiet as children. I would try seeing different diagnosticians. But then again I didn't really get help for mine, I was diagnosed with 'mild Asperger's' and ADHD and dismissed.

    Good luck with your diagnosis!

  • I asked my mum to fill out the CAST even though I knew it would give a low score. I was considering not using it but then felt a bit strange about not involving my mum even though we are close - despite now worrying that I will be refused a diagnosis assessment based on this. I think this might be a trait of mine - being too honest whatever the cost! I am hoping to get an NHS diagnosis as I don't really have the funds for a private one, I've heard they are very costly!

  • Good luck with your diagnosis! Unfortunately with the NHS you sometimes have to exaggerate things to be taken seriously.

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