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NHS say no to adult autism diagnosis

Valgal

Hello im Val

Ive been in and out of the mental health system since the age of 19, im now 50yrs young.

Any help given to me I get so far then its all pushed away.

I struggle to explain myself to them, the words never come.

, I fail to correct them so it all leads to a false image of me to them, they get angry they dont want to help anymore.

My sister wants me to be diagnosed for Autism, she sees a lot of autism signs, she knows a lot about it as her daughter is autistic.

NHS wont help, my Dr tells me to go private, i here it can cost thousands it just seems like a dead end for me.

Lockdown has in a way been a break from the pressures of life but yet im pushed into doing things that need done that cant be avoided.

Im mentally drained, lonely and lost.

I think I just want to be heard and understood just once and accepted for who i am.

Parents

  • Hi - Welcome aboard - I'm a mid-50s aspie.

    If you recognise yourself as ASD, there's a lot you can do to make your life easier - analyse your stress triggers and work out how to avoid them - but be aware that you might need to make radical changes if you want to find happiness.

    Silly question - do you work?  If so, your company healthcare insurance sometimes covers private diagnosis - mine did.

  • in reply to Plastic

    Im classed as disabled, i do not work. I just want to get a diagnosis to help me go forward.

  • in reply to Valgal

    What do you think you will get from the diagnosis?    It's just a piece of paper.   

    I've done a lot of self-analysis about my ASD - it all seems to boil down to the inability to process stress and being over-stimulated all the time.

    How does it affect you?

  • in reply to Plastic

    Youtube is my best friend, id be lost without it its all I watch and learn.

  • in reply to Valgal

    We still do ComicCon......  Smiley     Do you watch the Youtubes about costume making? - I like the armour costumes like HALO etc.   Some people are unbelievably skilled!

  • in reply to Plastic

    Been looking through some photos of when I used to go to comic-con, as a family we made all our own costumes it was good times but life changes and things come to an end so got some pics made at amazon came today in post so there now hanging happly on my wall hehe.

  • in reply to Valgal

    Been playing with the new toy - £26 well spent!!

    Are you making anything at the moment?    Any projects on the go?

  • in reply to Plastic

    it all sounds so much fun, and yes the sculptor on there is awesome.

    Well thats another day here and atleast its not raining yet hehe.

  • in reply to Valgal

    I'm into synths too - I've literally just received a Korg DS-10 from ebay this afternoon - it's cool - a couple of analogue synths, drum machine, effects unit and sequencer in a Nintendo DS cartridge - I'm gonna have fun with it!   I can't read music either but I know/  can fake enough to be able to create electronic music - think very old Depeche mode or Human League (Pre Heaven 17).

    I also do Technical Lego, huge RC models boats, Airfix models and any other nerdy / techy stuff.  Smiley

    Do you watch Salvage Hunters- the Restorers?    The sculptor on there blows me away!

  • in reply to Plastic

    I seem to jump from hobby to hobby so quickly its like i need to know it all in one go hehe. 

    My profile pic is a sculpted fairy I made years ago, super sculpey  was my thing.

    I like to play electric piano and synthesizers with a guitar looper pedal and make ditties small tunes yet I can not read music.

    And a strange hobby came about after holding a baby doll that someone had painted and weighted to look and feel freakishly real. I felt something that I had never felt before, I felt calm and safe.

    I started sculpting life size babies with clay limbs and cloth body my partner at the time owned a shop, every baby made was sold to nurses and midwives and some as far as Hong Kong.

    Not so creative these days as its hard to stay focused but I try

    What do you like to do hobby wise :)

  • in reply to Valgal

    I could have been the quiet one - I just decided not to be.     It's all a big performance - I probably deserve an Oscar for "most convincing performance in the role of normal person"    Maybe an MBE too  Smiley

    It all came at great cost - I developed a stress-related health problem 20 years ago.

    What do you do to relax and wind down - do you still draw?

  • in reply to Plastic

    Hands up I was the quiet one who got targeted by the bullies but most of the time I had my head stuck in my sketch book with a pencil.

  • in reply to Valgal

    I'm a twin too - I had a 'working version' of me to copy and measure any time I couldn't work out what was going on.       I was very independent thinking and couldn't understand why the 'normal' people did all the crazy, chaotic things they did and weren't able to solve simple problems.

    By around 12, I'd decided to create a huge extrovert personality so I could be loud and 'eccentric' rather than a quiet target for bullies.

    We were always treated as a composite person so my quirks were covered up by his normality.   I was only diagnosed in my 40s.

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  • in reply to Valgal

    I'm a twin too - I had a 'working version' of me to copy and measure any time I couldn't work out what was going on.       I was very independent thinking and couldn't understand why the 'normal' people did all the crazy, chaotic things they did and weren't able to solve simple problems.

    By around 12, I'd decided to create a huge extrovert personality so I could be loud and 'eccentric' rather than a quiet target for bullies.

    We were always treated as a composite person so my quirks were covered up by his normality.   I was only diagnosed in my 40s.

Children