NHS say no to adult autism diagnosis

Hello im Val

Ive been in and out of the mental health system since the age of 19, im now 50yrs young.

Any help given to me I get so far then its all pushed away.

I struggle to explain myself to them, the words never come.

, I fail to correct them so it all leads to a false image of me to them, they get angry they dont want to help anymore.

My sister wants me to be diagnosed for Autism, she sees a lot of autism signs, she knows a lot about it as her daughter is autistic.

NHS wont help, my Dr tells me to go private, i here it can cost thousands it just seems like a dead end for me.

Lockdown has in a way been a break from the pressures of life but yet im pushed into doing things that need done that cant be avoided.

Im mentally drained, lonely and lost.

I think I just want to be heard and understood just once and accepted for who i am.

  • All they say is that I have High Anxiety,  I need help in finding the right help,  like i said I fail to communicate and get my feeling and answers across its like a mental block every time, they get angry and tired of me it never ends good at all. I just wish there was someone who understands me like my sister my mum they get it they know what I want to say when I struggle to finish a sentence.  I cant say thank you enough, im a difficult person and I dont always understand.  My gp read my life story I really thought it would have got me somewhere but it hasnt.

  • Do you have other diagnoses? Mental illness? Learning difficulties? 

  • If you are not getting anywhere with your Gp then I suggest when you next see your doctor mention and inform them you wish to act on your NHS right to choose. You can then get a form that enables you to through a semi private assessment that is funded by the NHS as long as the private organisation operate within the right to choose. 
    Psychiatry UK are famous for ADHD assessments but I have been told they may assess for autism as well.

  • Sorry for the confusion  she did not offer me the ASD test.

    I just have been messed around so much I do not know who is right.

    I will phone my local council and see how I get on.

    Thank you for your help.

  • Thank you Blush

  • wish granted

  • its good having u around Slight smile

  • I'm unsure if I'm reading what you have typed wrong but ASD test is the autism test that you want. Are you saying that the GP offered you this or am I reading that wrong?

    You are also incorrect in feeling the need to ask the GP to refer you for a social worker. You can request an assessment yourself by ringing your local authority and asking for either a needs assessment or a care act assessment (they're the same thing). You don't need a diagnosis for this, only two or more needs in areas of daily living such as making meals, personal hygiene care, accessing work, accessing community etc. 

  • Well 16 days for my appointment with my Dr its finally here.

    I asked again about autism diagnosis and once again she said no nhs test for adults only ASD tests.

    She told me to go to the autism website which I had done before she even mentioned it, thanks to you guys I kinda know where I stand and what to do next.

    I said to her that I'm entitled to a social worker who can help me with this but the only person that can refer one to me is you the Dr.

    She said she would see what she could do but if its anything like last time she told me to phone them as she couldnt get through.

    Im scared its going to happen again, getting no where.

    We talked about my MRI my spine is fine just slight ware and tare, I pointed out the MRI showed fused bones in my neck with a disk pushing slightly into the nerve which was causing the weakness and numbness in my arms and hands.

    Ive had symptoms of fibro and she is going to test me with the pressure points on the 22nd april to see if she thinks I have it.

    I had gout in my foot and got treated with steroids in march last year but have been left with sore toes feet since, now in my hands so a blood test will be done to confirm I do have gout. 

    we are getting somewhere I think.

    I wish everyone a good day, a better day, x

  • I'm a social worker for adult social care and this isn't correct so you need to ring again. 

    Google the Care Act 2014 to find the specific criteria we use and see if you think you meet it. 

  • You do not need to go through your Doctors to request a Needs Assessment you can contact you local authority and request one yourself. They legally cannot deny you an assessment and once requested the local authority have to carry it out.

    You must request a needs assessment before asking for a social worker. You also need to make sure you request a "Needs Assessment" and not a care or careers Assessment.  

  • I find younger doctors seem a bit more in-tune, but having said that I went private eventually.

    Ben

  • I have to get a social worker through my gp  she tried phoning social work a couple of times and gave up she told me to phone so i did and social work says she should not have done that it has to be the gp that has to phone.   I really dont know what to do its like farting against thunder.

  • Blue is right. You don't need a diagnosis to pursue a Care Act assessment and a social worker would then advocate for you to have further assessment through speaking to your GP on your behalf. They won't be waiting 16 days to speak to the GP either because that is just ridiculous. 

    In the local authority I work for, a range of professionals can also refer for autism assessment and it includes social workers, so you may find you can access assessment in that way anyway. 

  • i have to wait sixteen days before i can get a phone appointment with my Dr, I have had no response with the life story my sister had written either to my Dr.  I wish i had the support to help me get to where I need to be.

  • I hate saying this, but have you thought of about contacting your local authority getting a needs assessment done, they cannot deny performing assessment. The assessment will result in a range of support and can help you pursue a diagnosis if their is a need.

    Once a needs assessment is complete and believe their is a need not matter how small they can help arrange or direct you to autism social events or activities for your age group, help with accessing services including benefits, arrange appropriate mental health support.

    your age isn’t an excuse for your GP to deny you an autism diagnosis in fact your age increases your need for a diagnosis as it can impact your quality of life as you get older. 

    the lack of funding isn’t an excuse and you have to put your foot down at your GP as it sounds like he has a lack of understanding or knowledge on autism to make that decision. A GP’s job is to refer and direct you to services and not gate keep you from accessing services. 

  • Youtube is my best friend, id be lost without it its all I watch and learn.

  • We still do ComicCon......  Smiley     Do you watch the Youtubes about costume making? - I like the armour costumes like HALO etc.   Some people are unbelievably skilled!

  • Im away to send what my sister wrote for me to the Dr I hope she listens this time, if not ill send it to another Dr but its knowing which Dr would be ideal.  Thank you :)

  • Been looking through some photos of when I used to go to comic-con, as a family we made all our own costumes it was good times but life changes and things come to an end so got some pics made at amazon came today in post so there now hanging happly on my wall hehe.

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