Gettting a diagnosis

Hi, I'm a 16 yr old girl and have been thinking for over a year that I might be autistic. I dont know whether I am faking and I dont want to take space in a community that is not mine to take. I relate heavily to a lot of the signs but I dont want to tell my parents or get a diagnosis in case I am not autistic and then it seems as though I want attention. Is there any advice anyone could give on what I should do? Thank you :) 

Parents
  • I'm twice your age at 32 and this is also my fear! I've got my initial assessment next week. I think you should write down all things that make you think you are autistic and then see how big the list grows. I found this has helped me to feel I've got a bit more integrity because I've gathered the "evidence". 

  • Thank you! How big do you think the list should be before I should address it?

  • Hi both. Thank you for your posts. I am a parent of a 10 year old with exactly the same fears. We both think she might be autistic but are worried we will seem as though we're making a fuss I we seek as assessment. She has a lot of traits but masks very well, especially at school. It seems to me that things can get a lot worse for autistic girls when they go to secondary school, so feel this might be a good time to get an assessment. Can I ask what your experience was of moving to secondary?

  • For me, I definitely became more socially withdrawn at secondary school and by mid secondary school it became very overwhelming as everyone is in such tight-knit groups and I felt very isolated from that, also relationships take up a big part of secondary school life which I was just lost in. It took me a long time to properly make friends and I did not (and still dont) have a very big social life- this was much harder than primary as parents no longer organised 'play-dates' and I never knew if people even wanted to hang out with me. I think you become accustomed to saying and doing appropriate things but it was often so overwhelming I would go home and stay in my room away from my family for hours just to be alone and recharge. This is an issue I am facing even more so in college. I dont see why you shouldnt get an assessment, I think if I had noticed earlier it would have saved me a lot of worry and concern of how different and isolated I feel. I hope this was helpful (if a bit long), but I am not diagnosed so dont take my word as 100%!

Reply
  • For me, I definitely became more socially withdrawn at secondary school and by mid secondary school it became very overwhelming as everyone is in such tight-knit groups and I felt very isolated from that, also relationships take up a big part of secondary school life which I was just lost in. It took me a long time to properly make friends and I did not (and still dont) have a very big social life- this was much harder than primary as parents no longer organised 'play-dates' and I never knew if people even wanted to hang out with me. I think you become accustomed to saying and doing appropriate things but it was often so overwhelming I would go home and stay in my room away from my family for hours just to be alone and recharge. This is an issue I am facing even more so in college. I dont see why you shouldnt get an assessment, I think if I had noticed earlier it would have saved me a lot of worry and concern of how different and isolated I feel. I hope this was helpful (if a bit long), but I am not diagnosed so dont take my word as 100%!

Children
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