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NHS app mistake

Good for you I guess

Looking at my 'GP health record' in the NHS app, I can see that in 1998 I was logged as having “Autistic Spectrum Disorder”. I was never told this.


In 2017 a psychiatrist interviewed me and my family and friends before referring me to the autism centre who did more assessments and then diagnosed me with autism spectrum condition (some 20 years after it was first noted in my medical record).

I emailed my current GP about this, he said that the 1998 date is probably just a mistake as he has no record of autism spectrum disorder in my childhood (then again, I lived in a different county until 3 years ago, and I know how bad the NHS is at communicating).

I just wondered if anyone had faced a similar problem.

How do you suggest I get to the bottom of this? 

Parents

  • Yes, I have something similar noted in my medical records of me having autism when I was two years old which happens to also be dated in 1998. At the time I was in foster care. But like you I didn’t get diagnosed until I was twenty two. 

  • in reply to Blue

    Did you follow it up or did you just accept it was probably a mistake? I can understand why you might have thought it was just a mistake if you would have been 2, but I was 10 in 1998.

    If you did ask any questions about it, who did you ask and what did you ask them?

  • in reply to Good for you I guess

    I contacted both the NHS general enquiries line and social services to find out why i wasn't tested further, It turns out my foster parents at the time where pursuing a diagnosis and part way through the process my mother got well enough to take me and my brothers back and failed to pursue it further. No it wasn't a mistake, But my doctors surgery i have seen since i was baby has a lot of explaining on why they missed this crucial information and wrongly encouraged and prevented my mother from getting me tested sooner.       

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  • in reply to Good for you I guess

    I contacted both the NHS general enquiries line and social services to find out why i wasn't tested further, It turns out my foster parents at the time where pursuing a diagnosis and part way through the process my mother got well enough to take me and my brothers back and failed to pursue it further. No it wasn't a mistake, But my doctors surgery i have seen since i was baby has a lot of explaining on why they missed this crucial information and wrongly encouraged and prevented my mother from getting me tested sooner.       

Children