• Replies 6 replies
  • Subscribers 83 subscribers
  • Views 1295 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

NHS app mistake

Good for you I guess

Looking at my 'GP health record' in the NHS app, I can see that in 1998 I was logged as having “Autistic Spectrum Disorder”. I was never told this.


In 2017 a psychiatrist interviewed me and my family and friends before referring me to the autism centre who did more assessments and then diagnosed me with autism spectrum condition (some 20 years after it was first noted in my medical record).

I emailed my current GP about this, he said that the 1998 date is probably just a mistake as he has no record of autism spectrum disorder in my childhood (then again, I lived in a different county until 3 years ago, and I know how bad the NHS is at communicating).

I just wondered if anyone had faced a similar problem.

How do you suggest I get to the bottom of this? 

Parents Reply Children
  • in reply to Blue

    Thanks for that. I don't think mine is just a simple mistake either. It seems like too much of a coincidence. So I'm just trying to think what to do next.

  • in reply to Good for you I guess

    I contacted both the NHS general enquiries line and social services to find out why i wasn't tested further, It turns out my foster parents at the time where pursuing a diagnosis and part way through the process my mother got well enough to take me and my brothers back and failed to pursue it further. No it wasn't a mistake, But my doctors surgery i have seen since i was baby has a lot of explaining on why they missed this crucial information and wrongly encouraged and prevented my mother from getting me tested sooner.