People relativising AS and telling you that you seem 'normal' to them ?.

Hello,

I hate it with a passion when people say to me, often randomly, 'I don't think anyone would have thought that you struggle with asperger's, you seem so normal', and then they say that they themselves struggled to fit in at school for some reason and does that mean they therefore have aspergers? It is like they are questioning the diagnosis by implying I cannot possibly have AS because I am so chatty and extrovert!. They do not realise how their comments make me feel sick inside, the anguish and stess the comments make me feel, particularly when the comments come from people who should know better. My regular support worker understands me and would never relativise my AS, but a support worker who has only recently started working with Autistic adults and who does not have much experience in this field, recently came out with these comments and left me feeling hurt and upset, although in other respects I get on with him. I feel like I am a fake, that my identity is being questioned, and it makes me feel unhappy, like I will be a perpetual outsider, not fitting in anywhere. I don't wish to be defined by asperger's, but it is nevertheless such a big part of my identity and I am so proud of my achievements and successes with regard to fighting back against my anxiety and the negative side of my AS and how my experiences have shaped me as a person. I always feel like I have to justify myself and it makes me feel so tense and upset. Anyway, I felt like replying, what am I supposed to look like as a person with AS? Am I supposed to hardly talk, to be rude and non-compliant or highly distracted?.

Has anyone else with high-fuunctioning AS experienced similar issues? I do feel so unhappy at the moment, but maybe I am being too analytical and taking things too far.

thanks

jackyjoy

Parents
  • Two things that drive me crazy are when I recognize the fact that my thought process and/or behavior is unusual and someone tells me that it's not and that I'm just being too hard on myself. For one thing, it makes me feel like I'm being talked down to and that I just don't have a clue about my own thoughts, and secondly, they're implying that I'm in the wrong for being different since I'm supposedly "being too hard on myself."

    The other thing is when someone who has no clue what's going through my head tells me they understand. It probably shouldn't bother me like it does, but it absolutely drives me nuts. I have struggles, and trying to pretend like it's something everybody deals with isn't helpful. They're not in my shoes any more than I'm in theirs and know what's going on in their head.

Reply
  • Two things that drive me crazy are when I recognize the fact that my thought process and/or behavior is unusual and someone tells me that it's not and that I'm just being too hard on myself. For one thing, it makes me feel like I'm being talked down to and that I just don't have a clue about my own thoughts, and secondly, they're implying that I'm in the wrong for being different since I'm supposedly "being too hard on myself."

    The other thing is when someone who has no clue what's going through my head tells me they understand. It probably shouldn't bother me like it does, but it absolutely drives me nuts. I have struggles, and trying to pretend like it's something everybody deals with isn't helpful. They're not in my shoes any more than I'm in theirs and know what's going on in their head.

Children
  • Going through a similar thing. In my experience there is benevolent intent - they're trying to empathize and connect - although they're coming from a different place than we are which causes this kind of misunderstanding and friction. I'm realising that I've got to work to frame the message in the right way for NT's to understand - and that will depend on the individual - and in some cases it will take time for them to move closer to that understanding.